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Mon, Apr 15 5:45pm · CRPS or Peripheral Neuropathy in Brain & Nervous System

Thank you both for the information! Everything I’m reading is clearly indicating CRPS. While I don’t have the burning pain, I do have the always frozen foot. I have muscle cramps and spasms. I also have lost dorsiflexion in my right ankle along with atrophy to my ankle and calf. At times I feel like my lower half of my body is freezing, vibrating, cinder blocks that are being electrocuted. During the day when I’m in a sitting position I tend to do better. But walking or even sitting with my legs extended causes severe symptoms.

I’ve tried Lyrica and Trileptal which both worked great, but I was allergic too. So right now they are only treating me with Tramadol and Vicodin. I have never had blocks before. And have been denied due to the IME dr not agreeing with my DX.

I’m already 20 months into my injury and just being diagnosed and they really want to do the blocks to hopefully help treat the CRPS. As we all know the sooner you treat it the better the outcome. But now will be pushed back in further due to fighting this out in court.

My injury was a right ankle avulsion fracture, high ankle sprain. Which ended up needing surgery 11 months into treatment. Symptoms have been there since original injury, and made worse after surgery.

Sun, Apr 14 7:45pm · CRPS or Peripheral Neuropathy in Brain & Nervous System

What is the difference? I have had 3 drs diagnosis me with CRPS, and I went to an IME dr and he said I don’t have that, I have Peripheral neuropathy.

WC is now denying my blocks, and the nerve meds that I have tried I’ve been allergic too. So am basically just on pain meds right now. Which I really don’t want to be on.

My lawyers are fighting this but in the meantime I have to wait. I’ve googled but they seem so similar. And I’ve read that the blocks are used for both so why would WC deny them even if it’s not CRPS?

Sat, Mar 30 12:38pm · CRPS Question: Itching in Chronic Pain

@barbbie
I’m glad to hear cause I’m very nervous about the blocks. I’m hoping they work.

I’ve had the foot drop since 6 weeks after the ankle injury. Kept on getting sent back and forth to drs cause even now they think it’s a mechanical issue with my foot. I truly believe it’s the RSD/CRPS.

What brace have you found works the best? When I where tall boots (like riding boots) I can’t actually walk with a slight limp. But without that boot I can barely walk. Trying to figure out my options for summer. Shoes and braces. This is a WC case so the waiting for the brace is also my issue. My pain management dr said the braces may be uncomfortable for me too.

Thu, Mar 28 10:11pm · CRPS Question: Itching in Chronic Pain

Well I used the patches with not much success. My dr finally called in a script for pain meds.

Had my first apt with pain management and he staged me as late stage CRPS since my foot was freezing compared to the other one.

He is putting in for Sympathetic nerve block. 3 of them a week aprt each.

I’m terrified cause I keep reading people end up in more pain then when they started and don’t work.

He also said I will most likely not get full dorsiflexion back in my foot and getting a drop foot brace is the best way to go right now.

Ugh I’m so cunfused and upset. I knew by reading this isn’t fun but when you finally get the bad news it just breaks you.

Tue, Mar 19 7:43pm · CRPS Question: Itching in Chronic Pain

I haven’t tried patches. How do they work? I can just go to the pharmacy and pick them up?

I will try anything to feel human again.

Tue, Mar 19 2:05pm · CRPS Question: Itching in Chronic Pain

Update-

So the itching was from the new medication Trileptal. My dr upped my dose on Thur and I woke up in complete hives. I called Dr. (on call dr called me back not my dr) right away and they told me to stop taking meds and take Benadryl. Woke up Sunday still in hives and they called in prednisone. I called my dr on Monday and he said to stay off all med for a week to let my system clear and call him back.
I tried going back to work today and couldn’t even make it a few hours. My whole body is shaking, my legs from my waist down feel like vibrating cinder blocks that are being electrocuted. I came home and took a tramadol which helped with the heavy ness in my legs but that’s it. I feel just awful.

I don’t see pain management until 3/28. What else can I take to ease this pain. I seem to be allergic to all the nerve meds.

Thu, Mar 14 6:14pm · CRPS Question: Itching in Chronic Pain

@rsnowflake @barbbie

I live in New York. I was pretty healthy before my ankle fracture. But do have severe environmental allergies. I’ve never suffered from hives prior to Jan 2019.

I’ve been reading that people with CRPS, their health starts declining once diagnosed. I feel like that has started since Jan. 13 months into this mess.

I really believe the itching is from the nerves. But I just don’t feel like anyone listens.

I don’t know which dr to go to to figure out my symptoms. Drs say take this med and then pass me off to the next dr.

My next stop is pain management but would he deal with the itching too. It’s my husbands dr so I know he won’t prescribe meds. So then what?

I know this isn’t an early find. I already have muscle atrophy in my calf and my ankle. But I don’t have the severe all day burning pain. But have everything else all day long.

Thu, Mar 14 5:59pm · CRPS Question: Itching in Chronic Pain

Thank you so much for adding others. The only thing that has helped was being on prednisone. But once weaned off it’s slowly coming back.