About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (6)

Sat, Mar 2 7:41pm · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

I’ll bet you were. Just another thing to worry about. Thanks for the info on the prednisone

Sat, Mar 2 5:59pm · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

How were you able to do the 1 mg. What is the lowest dosage of pred. This is my plan also. Very slowly. Thx

Sat, Mar 2 5:57pm · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

Yes, I asked about adrenal problems and doc told me not to worry about it. That is an answer I do not like. Wow. 3 1/2 years on prednisone. This seems to manifest itself in so many different ways. Very difficult. I’m out of state right now but when I get home i have an appt with a neurovascular dr and a neuro opthamologist. I hope they know a little bit more about this.

Sat, Mar 2 4:33pm · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

Would you believe they couldnt find a vein for biopsy on one side. They did the other side but the 15 minute procedure took 1 hour and 15 min. Then was told by rheumatologist that the sample was too small. No never had the shingles shot. I’m happy to hear that you tapered that slowly. One of my drs said to go go from 60 tapered down to 40. Think that is way too fast. . When you went to 17 1/2 what symptoms did you have that required you to go back to 20.

Sat, Mar 2 2:32pm · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

My biopsey was negative but my rheumatologist said I did have it based on symptoms and a sed rate of 80. This is very tricky to diagnose.

Sat, Mar 2 11:38am · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

Just diagnosed. On 60mg prednisone for approximately 6 weeks. I have a side effect that none of my doctors can identify. I have jaw claudication and when I chew two golf ball size lumps appear between eyes and ears. Has anyone experienced this?