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5 days ago · Cognitive Behavioral Therapy forChronic Pain in Chronic Pain

Thanks for your reply. Biking does not seem to hurt me . I cannot ride an individual bike any longer due to very poor balance. My husband and I have been riding a tandem bike for over 25 years. That still works for me and is a source of pleasure in warm weather. Yoga is a mixed bag. I think that sometimes I try to hard and actually hurt myself. Knowing my limits seems to be hard for me. Swimming (I used to coach it) used to be my best exercise, but the university pool closed for good and the high school pool is just too cold for someone with fibromyalgia. Walking is great when it is safe Lasy winter I fell 6 times, once resulting in a hip and back injury and another time a concussion. If I walk with my husband it is usually safe. Thanks for referring me to some information. I appreciate it.

6 days ago · Cognitive Behavioral Therapy forChronic Pain in Chronic Pain

Hello. I’m a fellow traveler on the pain journey. My two biggest issues are fibromyalgia and migraine with neck pain. Sjögren’s, Raynaud’s, GERD, and osteopenia are also on my list along with the anxiety these things trigger.

Recently my doctor had me go to a class for dealing with chronic pain. The textbook offered quite a few hints for getting my mind off my pain and onto more positive things. I have been practicing as many as I can: gratitude, relaxation, mindfulness, self talk, visualization, music, staying busy, and helping others. These things have made a difference in the amount of pain medicine I am taking. (I can only take Tylenol.).

My doctor thinks I am a good candidate for cognitive behavioral therapy for chronic pain. He said that it would require multiple therapy sessions each week for a few weeks and then just occasional check-ins. Having majored in psychology I tend to believe in the power of the mind to learn new responses to pain stimuli.

Can anyone speak about this from experience? I would like to hear some success stories. By that I mean that it brought your pain to a point where it did not rule your life. I’m not expecting a miracle, just some positive change.

By the way, I’m 71 year old retired science and math teacher. I still sub occasionally. I do yoga, exercise class, Zumba gold dance class, play pickle ball, use an elliptical machine and recumbent stationary bike, and walk our dog. I try to just keep going even though a lot of things hurt.

Thanks for any input you can give me. El

Sat, Nov 16 8:44am · Having a bad day in Chronic Pain

Cold and gray weather hit me every time. Not good for people who have fibromyalgia. The cold makes you contract your muscles which is just what you do not want to do.

Try making yourself a warm bubble bath and soak for a while. Or take an extended warm shower. That usually helps me a little. Think as positively as you can. Meditate. Think about all the blessings in your life. There is no magic bullet, but sometimes little things can move your perception of the day to the positive side of the scale.

I will be thinking of you and all the others who share our diagnosis. We can handle this if we stay positive. It’s hard. I know. El

Wed, Nov 13 7:56am · pain in my head in Chronic Pain

I had 3 Botox shots. Numbers 1 and 3 did nothing. Number 2 helped for about 3-4 weeks. Next
week I will have a nerve block, and I am really hoping it will help. Sometimes I think my head will explode. I also have a sleep study coming up next month as well as a consultation for my fibromyalgia in Rochester on Dec. 23 and lab work and a rheumatology visit on December 20. Sjögren’s has worsened so that my tongue is stuck to the roof of my mouth when I wake up in the morning. I can’t take the saliva producing meds. This has been the most challenging time in my life. I am driven to find some answers. Thank you for your input.

Mon, Nov 11 6:31pm · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

I typed the word impossible in my previous message, but my not so smart phone changed it to important.

Mon, Nov 11 6:28pm · Chronic Pain members - Welcome, please introduce yourself in Chronic Pain

I’m not sure where this topic belongs. I have Raynaud’s disease. I very very often have extremely ice cold feet. Not just cold, but I feel like I am walking on blocks of ice. Once they get cold it is nearly important to warm them unless I soak in a warm bathtub. Getting cold is not just from being outdoors on a cold day. I can just be in the house and with no apparent cause my feet turn very cold. Does anyone else have this problem? I realize it isn’t much of a problem compared to others.

Sat, Nov 9 1:06pm · pain in my head in Chronic Pain

Hello jmb73. It did my heart good to know that somebody else has the same concern as I do. Although I’ve had constant migraine since 2013, almost 2 years ago a new pain began. It started with neck pain which I was told was arthritis. Then the back of my head started to hurt badly. It has become so sore that even resting it against the sofa cushion made it hurt more. One other symptom is that I feel like I am talking and hearing through a layer of liquid. Weird! I have a constant runny nose. It leaks! The pain is less when I lie down than when I stand or sit. Sometimes it is nearly unbearable.

My neurologist has tried Botox. It hasn’t really been successful. Later this month (19th) he is going to try nerve block. I don’t know what to expect, but I am so anxious to try it (or almost anything at this point!). If anyone has experience with nerve block, please share it.

I have an adenoma on the left side on the pituitary. It is benign and stable. I have had 2 surgeries on the left parotid gland for benign tumors.

If the nerve block does not work, the plan is to redo an MRI. The last one was a year ago. I have asked about the possibility of cerebral spinal fluid leakage, but the doctor does not think so.

Any input will be appreciated. Thanks

Wed, Nov 6 6:27pm · Autoimmune mystery in Autoimmune Diseases

I can’t even imagine your wife’s suffering and your anxiety as you cared got her. I’m so glad she has you as her advocate. I am thinking of both of you and praying that there will be an answer for you soon.