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6 days ago · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker Terri, are you talking about the Mayo Clinic in Jacksonville? What is Dr. Levanthal's replacements name please?

Thu, Oct 17 6:51am · Testing Positive and Negative after MAC Treatment in MAC & Bronchiectasis

@windwalker Terri, what antibiotics do you take 10 days/month? Thank you!

Thu, Oct 17 6:42am · Percussion vest in MAC & Bronchiectasis

@gj53 I tried the HillRom vest and being so thin (as I imagine most of us are), it was uncomfortable. I would end up very sore from the vibrations. Only used for one month and sent it back.

Sun, Sep 1 3:35pm · Supplements and the Big 3 in MAC & Bronchiectasis

@windwalker I have been on the Big 3 for 7 months and tolerating well…ONLY because I am taking a good probiotic the night before. My history with antibiotics has shown that I not only become constipated but I don't sleep well and as a result am out of sorts. All fine with the probiotic. We are not only killing off the bad bacteria but the good as well, so replenish your colon with plenty of good! Take at least 12 hours before the antibiotics. ALSO! I have Medicare Humana Choice PPO here in Florida. Found that I could reduce the my co-payment cost of Ethambutol and Azithromycin by having a tier exception request form sent to my Infectious Disease doc who prescribed them. He signed and sent to Humana resulting in a change from Tier 3 drug to Tier 1 copay. Big Savings!

Mon, May 6 6:25am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@sounder27. 72 and still an active realtor, albeit MAC slowing me down. Before meeting with clients, I take the Broncolin cough syrup recommended here. And have their cough drops on hand. Work splendidly!
Pulmonologist ordered tiny little perles of Tessalon which are helpful too.
Where do you live? I’m in Longwood just no of Orlando.

Thu, Apr 18 4:32pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@america I have heard he is good. All the best! It will be interesting to hear what he says!

Thu, Apr 18 3:50pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@america Which Doctor? In 2012 I saw Dr. Arunthari there who only prescribed Levofloxacin if my cough got worse and albuterol inhalation (which I stopped because it made my heart race). So, over the years since, I probably took the antibiotic 10 times a year….but I wish we had known that it only treated symptoms and not the bacteria itself. I have suffered with MAC since 2006 and they knew I had it but that's all he did. Maybe that's all they knew to do back then. Haven't been back there since. Just got on the antibiotic regimen this past month following a bronchoscopy revealing nodules, etc. Already feeling much better!
I live in Longwood, north of Orlando. And you?

Thu, Apr 18 1:57pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@america. Which Mayo Clinic do u go to and who is the doc please?