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Sun, Sep 1 3:35pm · Supplements and the Big 3 in MAC & Bronchiectasis

@windwalker I have been on the Big 3 for 7 months and tolerating well…ONLY because I am taking a good probiotic the night before. My history with antibiotics has shown that I not only become constipated but I don't sleep well and as a result am out of sorts. All fine with the probiotic. We are not only killing off the bad bacteria but the good as well, so replenish your colon with plenty of good! Take at least 12 hours before the antibiotics. ALSO! I have Medicare Humana Choice PPO here in Florida. Found that I could reduce the my co-payment cost of Ethambutol and Azithromycin by having a tier exception request form sent to my Infectious Disease doc who prescribed them. He signed and sent to Humana resulting in a change from Tier 3 drug to Tier 1 copay. Big Savings!

Mon, May 6 6:25am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@sounder27. 72 and still an active realtor, albeit MAC slowing me down. Before meeting with clients, I take the Broncolin cough syrup recommended here. And have their cough drops on hand. Work splendidly!
Pulmonologist ordered tiny little perles of Tessalon which are helpful too.
Where do you live? I’m in Longwood just no of Orlando.

Thu, Apr 18 4:32pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@america I have heard he is good. All the best! It will be interesting to hear what he says!

Thu, Apr 18 3:50pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@america Which Doctor? In 2012 I saw Dr. Arunthari there who only prescribed Levofloxacin if my cough got worse and albuterol inhalation (which I stopped because it made my heart race). So, over the years since, I probably took the antibiotic 10 times a year….but I wish we had known that it only treated symptoms and not the bacteria itself. I have suffered with MAC since 2006 and they knew I had it but that's all he did. Maybe that's all they knew to do back then. Haven't been back there since. Just got on the antibiotic regimen this past month following a bronchoscopy revealing nodules, etc. Already feeling much better!
I live in Longwood, north of Orlando. And you?

Thu, Apr 18 1:57pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@america. Which Mayo Clinic do u go to and who is the doc please?

Thu, Apr 4 7:30am · newcomer in MAC & Bronchiectasis

Writing to welcome you and send positive energy your way. You must be a very strong person now, having braved your way through breast cancer, and now facing MAC. You will find a lot of help on this site and learn that the disease is controllable – especially if you attack it early. It is recommended you see the local Infectious Disease doctors and get on a plan of antibiotics. Of course, a bronchoscopy will reveal the exact strain of bacteria, if you haven't had that done yet.

Tue, Mar 19 4:16pm · Only read if open to alternative therapy for MAC in MAC & Bronchiectasis

@kristiemlove, Wonderful news about your mother's turn-around, Kristie! Was she using the silver and vinegar in addition to the 3 antibiotics or in place of? And, wondering what amount of vinegar. Thank you!

Sat, Mar 2 6:42am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@joanney Thank you for replying to my first post! Such a shame you have to have more shoulder surgery. Hoping you will be able to control the coughing while you are recovering. Perhaps try the Broncolin Honey Syrup with Propolis which has been recommended?