Badges (1)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (17)

Wed, May 27 5:48pm · Just started big 3 for MAC: Questions about dosing and more in MAC & Bronchiectasis

Finishing up on 15 months of the Big 3 at the end of May. At least I hope so. CT of Chest coming up soon so I will know if I can quit altogether. IDC doc had already reduced the azithromycin to one/day as I was showing signs of clearing. I have taken a good probiotic and ClearLungs by Ridgecrest every night. Rifampin before breakfast, azithromycin 1 hr after and ethambutol 2 hrs. after. Luckily, no side affects other than a bit of hearing loss – but I guess to be expected at 73! One thing I've done which might help you is I was able to considerably reduce the cost of the drugs. I had my dr. request approval of a Tier Exception by my insurance carrier Humana. They agreed to reduce to a Tier 1 copay which lowered my copay considerably. Best of luck with the antibiotics – get plenty of exercise and fresh air – breathe deeply!!

Thu, Apr 23 10:07am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I found Ridgecrest's ClearLung Extra Strength on ThriveMarket.com for about $30.00 Points are accumulated for orders made so I only paid $23.00. It's a great site – check it out!

Mon, Feb 17 3:10pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I have a dry cough one or two times per day, prompted usually by a chill or sometimes even an icy drink. Several months ago, a member introduced us to a honey syrup from Mexico called Broncolin – purchased from Amazon.com. It is made from natural plant extracts and propolis (Google this to see how helpful this "bee glue" used to hold hives together, works as a natural antibiotic). Both the syrup and cough drops have been fabulously helpful to me. And, as a plus, my 12 yr. old grandson said it cured him of a sore throat almost immediately! Would like to thank the gal who recommended it but didn't take note of her name. If you are reading this – Thank you so much!

Nov 13, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@windwalker Terri, are you talking about the Mayo Clinic in Jacksonville? What is Dr. Levanthal's replacements name please?

Oct 17, 2019 · Testing Positive and Negative after MAC Treatment in MAC & Bronchiectasis

@windwalker Terri, what antibiotics do you take 10 days/month? Thank you!

Oct 17, 2019 · Percussion vest in MAC & Bronchiectasis

@gj53 I tried the HillRom vest and being so thin (as I imagine most of us are), it was uncomfortable. I would end up very sore from the vibrations. Only used for one month and sent it back.

Sep 1, 2019 · Supplements and the Big 3 in MAC & Bronchiectasis

@windwalker I have been on the Big 3 for 7 months and tolerating well…ONLY because I am taking a good probiotic the night before. My history with antibiotics has shown that I not only become constipated but I don't sleep well and as a result am out of sorts. All fine with the probiotic. We are not only killing off the bad bacteria but the good as well, so replenish your colon with plenty of good! Take at least 12 hours before the antibiotics. ALSO! I have Medicare Humana Choice PPO here in Florida. Found that I could reduce the my co-payment cost of Ethambutol and Azithromycin by having a tier exception request form sent to my Infectious Disease doc who prescribed them. He signed and sent to Humana resulting in a change from Tier 3 drug to Tier 1 copay. Big Savings!

May 6, 2019 · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@sounder27. 72 and still an active realtor, albeit MAC slowing me down. Before meeting with clients, I take the Broncolin cough syrup recommended here. And have their cough drops on hand. Work splendidly!
Pulmonologist ordered tiny little perles of Tessalon which are helpful too.
Where do you live? I’m in Longwood just no of Orlando.