I have multiple Tarlov cysts as stated a few posts ago, and because they were ignored by doctors for so many years I have a multitude of other symptoms. I have bladder issues, bowel issues, peripheral neuropathy, low pressure headache, currently being tested for arachnoiditis, legs going numb, , nerve pain spreading, etc. I have finally found a team of doctors that support me. One of them believes that the nerve damage that is being caused in the lower region is starting to effect the rest of my nervous system and/or that it's overloaded causing issues in other areas. I now have nerve pain, tingling, cold feeling, burning hot patches, going down my arms too. My right arm is ending up with what looks like scratches or even stretch marks that last between 1 week and a couple months before going away. 2 of my doctors looked at it and agree that it's petechiae and they found other tiny spots all over my arm. They are in the process of running a bunch of blood work. I'm just listing all this stuff because I would like to stress to anyone that has Tarlov cysts to push your doctors and continue to pursue one that is willing to learn about them and get you to the right doctor to treat them. If your doctor is not responding to your questions or ignoring the cysts, that means it's time for you to move on. I was shrugged off and called a chronic pain patient for many years and at times looked at like I was just looking for the opioids. It's a shame that they treat people that actually need the pain relief but it's more common than you think. I learned how the medical world works the hard way and now have a bunch of permanent nerve damage on top of what seems like a million other new symptoms. I am currently waiting decision on my second appeal with insurance. They are denying my surgery saying that it's exploratory and that there is not enough medical evidence. Actually, the surgery is not exploratory and there IS a LOT of medical evidence available. I made the trip to Dallas, TX to see Dr. Feigenbaum. I was in tears to just have them validate all of the symptoms I've been experiencing. Remember that YOU are your own best advocate. Don't take no for an answer and be involved in every aspect of your healthcare even if it has nothing to do with the cysts. Reach out to various individuals and organizations until you find help. Ask all the questions you want and demand an answers. Research the crap out of Tarlov cysts and the symptoms it causes. The more knowledgeable you are the better. It's a long hard road but you will find the help you need. Most importantly, don't give up. I wish you and anyone else with this condition the best!