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Fri, Apr 26 7:47pm · Arachnoid Cyst in Brain & Nervous System

@kyoto and @lisalucier

The arachnoid cysts sound so much to me like Tarlov cysts, also called perineural cysts. They happen the same way and have all the same symptoms. I don't know what the difference is.I went to Dr. Feigenbaum in Dallas, TX in January and am currently fighting insurance. They denied my surgery claiming it is experimental and there is not enough medical evidence. I believe he also treats the arachnoid cysts. Someone from his office just told me that Rita, founder of Tarlov Cyst Foundation, just met with the national board of radiology (or something like that). She argued that all the "incidental findings" should be required to be documented. I would recommend going to http://www.tarlovcystfoundation.org Rita is very knowledgeable and could offer you some more information.The website has a ton of info. as well.

The headaches sound like mine too. My doctor says I'm having low pressure headaches. It happens when the cysts fill up with CSF fluid from the spinal canal. It doesn't leave enough fluid to cover the brain. Basically, your brain is being sucked inward which explains the symptoms. At least, that's how my doctor explained it to me.

I feel for you when you say you are losing precious time with your children and you are absolutely right! I feel the same way. I've been dealing with the cysts for over 15 years. I was not able to raise my children like I wanted to. They missed out on so much growing up. I also missed out on 15 years of my marriage. Thank god my husband is still trying to hold on for me. Things like this are just a couple of the many reasons radiologists and doctors need to look into these cysts. Undiagnosed, they can take a person's whole life from them!

Mon, Apr 8 9:44pm · Chronic Back Pain for Years in Spine Health

@pfbacon The fascia is like the silver skin on red meat. It encases all of our organs. When any kind of trauma happens it can tighten up. This is different that muscles/massage. You first need to get the fascia to release before you can start stretches and more vigorous activities. You will be sore afterward. I know I am whether it's MFR or massage. Try using a heating pad, sitting in a hot tub, or just a hot bath. Will be waiting to hear how your appt. goes. Best of luck to you.

Mon, Apr 8 9:33pm · Chronic Back Pain for Years in Spine Health

@pfbacon I hear you on the massage. Really the best thing to do is find a massage therapist that also does myofascial release. It's amazing and really helps.

Mon, Apr 8 4:55pm · Chronic Back Pain for Years in Spine Health

@pfbacon
Go to a decent massage therapist or physical therapist and ask them to do a light massage/myfascial release. It's amazing the relief it can provide. They can also tell you if they think your other issues are muscle/nerve related that they can treat or if you would need to find another doctor. Might be worth trying and it would be much less expensive.

Sat, Mar 30 3:45am · Arachnoid Cyst in Brain & Nervous System

Anyone know the difference between arachnoid cysts and perineural cysts, also called Tarlov cysts??

Tue, Mar 26 4:38pm · Chronic Pain Patients With Intractable Pain: Advocating for Yourself in Chronic Pain

@karen00
Your gut health controls so many functions and is so important. Be careful when deciding which ones to buy. The one I use has 50 billion organisms and 19 strains. I read that the higher number of each, the better for you. You can find them here: https://www.amazon.com/gp/product/B01ISXH62U/ref=ppx_yo_dt_b_asin_title_o03_s00?ie=UTF8&psc=1

Also, here is one of the articles I read that covers the bases: https://www.humnutrition.com/blog/the-guide-to-choosing-the-best-probiotic-for-you/

Hope this helps you! Take care!

Tue, Mar 26 4:09pm · Chronic Pain Patients With Intractable Pain: Advocating for Yourself in Chronic Pain

@terri72

Thank you for the ideas & for understanding my state of mind. Do you have any more info. for the NAD therapy? All I've found it that it's for drug addicts and their recovery. I do take probiotics for the gut health and am eating as healthy as I can. I will be checking out the infrared sauna! That's sounds great!!