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Posts (3)

Aug 8, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

I am a 43 yrs old female. Diagnosed 9 years ago when they called it Reflex Sympathetic Dystrophy Syndrome. They new VERY little about it. So I put it by the way side. Suddenly 2 yrs ago it hit me like a freight train. This pic is what my hands do during just a typical flare up. You are not alone. Feel free to talk to me anytime!!! I need support as well. Mayo clinic in Jacksonville, FL has a CRPS specialist on staff. They can do all the diagnostic testing and any treatment there. But they require a $5000.00 retainer, not including lodging. I live in Atlanta, GA and I'm gonna go out on a limb here and say….my name is Dana. Feel free to private message me. I am truly just trying to figure out where to even start with all this. And I have a 6 yr old son and 12 yr old daughter. But Im someone who understands what you are going through. Day or night. God bless!! Dana

Apr 8, 2019 · CRPS in Chronic Pain

Hi. My name is Dana. I am 43 and dont have words for the amazing similarities I have been finding in the posts of those fellow CRPS sufferers. I have to even resort to the microphones to type my messages because the pain it causes me to type with my fingers. I haven't put much about my story and what I've experienced with CRPS because it's just downright can be too physically painful. However I see how so very important it is that we reach out to each other in support and simply For the Love of our fellow men and women. I would be glad to share any details of my testimony and experiences with the hopes someone else May learn and mostly share encouragement that we are not alone. I am open to even phone calls or texts so we can get a better perspective. My name is Dana Stewart I am a 43 year old mother of a 12 year old and 6 year old. I live in the Atlanta Georgia area. Your contact or contact from anyone that shares our same disease is welcomed….