Badges (1)


Member has chosen to not make this information public.

Posts (81)

4 days ago · Gastroparesis in Digestive Health

Wow! You have gone through so much. I had colon cancer in 2001. I had chemo and radiation at the same time and then had surgery. I had an ileostomy for 3 months and had it reversed. I was diagnosed with radiation enteritis which they think caused the chronic intestinal pseudo-obstruction disorder or they said it could have been caused by my Sjogren's syndrome. I hope that everything goes well for you and you don't have to have any more surgeries. Elaine

5 days ago · Gastroparesis in Digestive Health

Thanks for your reply. When I went to Mayo they didn't think I needed a feeding tube and just told me to stay on Boost. I used to weigh 135 pounds and now I'm down to 101 pounds and keep losing weight. Who was the doctor you saw at Mayo? The doctor that I'm staying in touch with there really hasn't been helping me. I'm trying to get into a doctor at the University of Michigan who is a specialist in Chronic intestinal pseudo-obstruction CIP. I just don't know how much longer I can continue to live like this. It sounds like being on the feeding tube did help you gain some weight back. Did you have the tube through your nose or in your stomach?

Mon, Jun 17 10:23am · Gastroparesis in Digestive Health

I drink the vanilla or strawberry. I would like chocolate but can't have it. I don't mind the taste of it but I would prefer to eat regular food. Whenever I try to eat regular food I have gas, bloating and distention. I don't know if my doctor will put me on it since the problem is with my small and large intestines and not with my stomach. Thanks for your support though.

Sun, Jun 16 11:29am · Gastroparesis in Digestive Health

@pdilly Please disregard my last post. You did give me the address but I missed seeing it for some reason.

Sun, Jun 16 11:25am · Gastroparesis in Digestive Health

Thanks for the information. I'm sorry about your Mom. I had a hard time when my brother put my Mom in a nursing home. She was not happy about it and kept asking me to take her out. I was recovering from rectal cancer so I couldn't take care of her. It was hard on her and on me so I can relate. May God bless you.

Sun, Jun 16 10:58am · Gastroparesis in Digestive Health

Somehow I missed your post about the address in Canada. Thank you for the information. I will be talking with my doctor from Mayo on the 19th. I hope he will prescribe for me.

Sun, Jun 16 10:47am · Gastroparesis in Digestive Health

I'm wondering if you could give me the email address for the pharmacy you get the domperidone from in Canada.

Sat, Jun 15 5:48pm · Gastroparesis in Digestive Health

I'm getting discouraged because nothing has worked so far. I had to miss another family event today. I don't know if there is much that can be done except for staying on a liquid diet.