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1 day ago · Facial fasiculations and drooping eyelid in Brain & Nervous System

Wanted to update you all. I have not had my EEG as of yet but I may have accidentally figured out what is going on with me. The other night I caught a show on CNN about Benzos. I was on a Benzo for months and went off cold turkey about 7 months ago. Everything I have gone through since can be explained by benzo withdrawal. Right down to the fasciculations. Good news is that I am absolutely getting better as time goes on. I really had no idea that was what my problem was.

Fri, Sep 27 10:02am · Facial fasiculations and drooping eyelid in Brain & Nervous System

Good morning everyone. I have not had my EEG yet. I wont have it until November 13th and then I wont follow up until January 6th. They are very busy unfortunately.

Mon, Sep 23 11:09am · Facial fasiculations and drooping eyelid in Brain & Nervous System

One thing I am starting to wonder about is an event that happened in May of 2017. I was kicked in the head by a horse. Can't help but wonder if this might somehow be related.

Mon, Sep 23 7:54am · Facial fasiculations and drooping eyelid in Brain & Nervous System

I don't know what type of seizure is was but I do not before that happened I was having a cluster of episodes back to back and then bam, it was like I was run over by a truck. My memory is really fuzzy, I remember feeling like everything was moving around me. I recall the doctor trying to get me to respond to him and I could not talk. I was out of it.

Sun, Sep 22 7:15pm · Facial fasiculations and drooping eyelid in Brain & Nervous System

She has not mentioned much and we still need to do an EEG, this is all very preliminary. There are some lesions that show on the MRI but she is not sure if they are related. She is actually going off a video I captured last month.
My episodes start with either an unusual smell or sensations. then followed by sudden extreme fear. Sometimes I jump up and start randomly walking but they do not last very long, maybe 30 seconds to a minute but sometimes I have them multiple times a day and I wake up in the night with them feeling like I am spinning. It's very very strange and hard to explain everything I am feeling.
Unfortunately these short episodes are sometimes followed by much stronger attacks that leaves me incapacitated, disoriented, unable to make sense of my surrounding and overwhelmed with a host of physical sensations. I once even urinated on myself and another time fell out of the shower and was hauled out of my house buck naked in the dead of winter by EMT. Fun times:(

Sun, Sep 22 5:10pm · Facial fasiculations and drooping eyelid in Brain & Nervous System

Hello everyone,

There has been a sort of strange turn of events. I recently went to see my neurologist about this new weird symptom I am having. The last year has been nuts and I have had hundreds of strange unexplained episodes that have landed me in the hospital on numerous occasions. I was diagnosed with having refractory panic disorder and pretty much left to my own devices. Nothing helped. Then I recently started having twitching all over my body and most notably on my face under my left eye.

Turns out I have Focal Onset aware seizures, what used to be called Simple Partial Seizures. I may also occasionally complex partial seizures. Those are the ones that cause me to become unaware or mostly unaware, urinate myself, lose time and become incredibly confused and agitated, lose my hear in my left hear and smell things that are not there. This has happened on 3 occasions in the last 12 months:(

So that is what I know at this point.

Wed, Sep 18 3:56pm · Pernicious Anemia and B12 Ranges in Autoimmune Diseases

I was diagnosed in 2015. Do any of you with PA still have symptoms related to your PA even when your B12 levels are in normal ranges? I was under the impression that getting B12 shots would eliminate any issues caused by PA.

Mon, Sep 16 6:26pm · Facial fasiculations and drooping eyelid in Brain & Nervous System

Had to cancel because my kids was sick. lol