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5 days ago · CRPS in Chronic Pain

I too have been fired by many doctors, not for asking questions as much as for stumping them, which they don't like to admit. My Christian faith has provided two doctors for me who actually asked me to be their patient! One asked me when I visited a clinic he supervised. He has been my PCP for 11 years. The other called me on the phone and asked if I would like to see him for pain management. I have been seeing him for 7 years. I believe God, in His incredible way, was responsible. I have yet to meet another who was asked by a reputable doctor to be their patient., much less by two. Both of these men are the same age as my older son and I call them both by their first names.My PCP cares about my physical, emotional, and spiritual being. He sees me for 30 – 40 minutes a visit. He is a D.O. and also provides OMT which is great for me as I have numerous allergies to meds and much prefer his treating my muscle and nerve problems with hands on. Pain Management doctor is exceedingly talented and knowledgeable about so much and is so very current. on methods and treatments. He shows his care for me by avoiding the many things I am allergic to, by his fantastic sense of humor, by his not being intimidated by my many "weird" neurological conditions, and simply caring for me as a person. I feel truly blessed.
My prayer for you is that the right doctor(s) for you will be provided soon.

Thu, Sep 12 3:01pm · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

Have you heard of complex regional pain syndrome – CRPS? I have CRPS in both feet as well as SFN. Just a thought. See pain management frequently. Just had RFAs done in top of both feet. Looking for relief as well as looking forward to nerve to soles being injected. Spine is fairly well destroyed with arthritis and DDD. Don't think Dorsal Ganglion root can be done. Perhaps using my stimulator may be a way but am not sure I want any more surgery that CRPS can invade!

Sun, Sep 1 4:59pm · Living with Neuropathy - Welcome to the group in Neuropathy

I do not have Mortons Neuroma but I do have Complex Regional Pain Syndrome in both feet. I have a great pain management doc who is brilliant at what he does. He injected the sural nerve with an anesthetic. He hit the spot and now this week I am having radio frequency ablation. With RFA I have had relief from occipital headaches for almost 2 years so I have great hopes to keep the CRPS sharp, lightning pain at bay. The reason I have CRPS is because of 3 surgeries on the same foot. I would make surgery the very last resort.

Wed, Aug 28 7:16pm · Spinal Cord Stimulation in Neuropathy

What preparation was required? I've had two trials and two implanted. My second implant I had problems because of the Jackson table and the throwing around of my body. I did spend two nights in the hospital.

Sat, Aug 24 9:07pm · Spinal Stimulator effect on the heart in Spine Health

I have not had that problem. I do have SVT and an occasional Afib but I had those before the stim. I have found that with pain management too much cortisone sets my heart into more of both.

Sun, Aug 11 6:05am · Spinal Cord Stimulation in Neuropathy

Hi, Jim. I had my first stimulator implanted in 2012. In July of 2018 I had an updated version of my Boston Scientific implanted. I now have all day coverage on a silent level and I can add sensations where and when needed. I am looking forward to a dorsal root implant as I have small fiber neuropathy and complex regional pain syndrome in both feet. I have been told about people who were in wheelchairs able to walk with this implant. I am allergic to most meds. I do use oxycodone when all else fails – all else being stimulator, lidoderm pain patches, lidocaine and prolocaine cream, tens unit. I also have Degenerative Disc Disease and arthritis throughout my spine – top to bottom! Have also been dx with myofascial pain. I wake frequently with pain especially in hips and thighs. I need further investigation into that problem. I have a DO as my PCP and he has healing in his hands in doing OMT. I also have a DO for pain management . He is incredibly talented and knowledgeable about CRPS. I do like my stimulator. I am more active now as I am a caregiver for my husband who has dementia and non -Hodgekins Lymphoma. Our ages are 75 and 80 and I believe it is a miracle that I am functioning as I am. My faith in God sustains and uplifts me. He is nurturing me as I nurture my husband. I love being taken care of by my loving, merciful, generous Father.

Fri, Jul 26 1:15pm · Spinal Cord Stimulation in Neuropathy

I have a Boston Scientific Stimulator. I now have silent on all my programs which runs all the time. I have the choice of having sensations or not. I prefer to use the sensations during the day. At night I just need to ramp down the sensations to the silent area.

Sat, Jul 20 8:23am · Living with Neuropathy - Welcome to the group in Neuropathy

I also have many allergies to medications. I have Complex Regional Pain Syndrome in both feet and my left knee, as well as small fiber neuropathy from the knees down. Just had nerve studies done and was dx with severe distal sensory and motor neuropathy. Lots of pain involved. Last July I had my second spinal cord stimulator implanted. My first was done in 2012. I seldom take my oxycodone. I also have DDD throughout my spine and see pain management on a regular basis. I find radio frequency ablation rids me of pain from 6 months to two years! I am blessed to have an incredible pain management doctor who is brilliant, suffers from pain himself, is very caring, and has a great positive attitude.