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4 days ago · undiagnosed movement disorder in Brain & Nervous System

Wow! Your symptoms come closest to mine as I have ever read. In a span of 7 years I had 3 concussions with the last leaving me without a memory of falling, knocked out for about 5 minutes, postconcussion headaches, followed by a body wide increase in muscle contractions that started after my 2nd concussion, and then essential myoclonus. This has been going on since 1999. I take klonopin for the myoclonus. My muscles are tight but when I have an episode, generally started by someone touching or injecting around my right shoulder area, contortion is a good word for a description of the visual. Just had a bout at pain management that lasted over an hour. Time is all that helps resolve it as I am allergic to so many meds. I have been told they are all in my head and I am anxious. I deny either, well I 'm pretty sure the head injuries are responsible but that's not what they mean when they say all in my head. I find both myoclonus and sustained contractures exhausting and moderately painful compared to my other pain issues.

Dec 23, 2019 · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

My pain management doctor texted me the following when I asked about regenerative medicine:
There's better stuff, stem cells are not very viable when you put them from one place to another. Look up exosomes.

Dec 14, 2019 · Anyone used Spinal Cord Stimulation for pudendal nerve entrapment? in Chronic Pain

I have had my Boston Scientific stimulator since 2012. That was replaced in 2018 with a newer model. I find it very helpful for my neuropathy in my legs and CRPS in both feet as well as lumbar pain due to a variety of problems. I now use it 24 hours a day with night time use being on silent or close to it. I am allergic to many meds that might help, but I find this much more acceptable. Have any questions I might be able to answer, I'd be glad to. I also have pudendal nerve damage from the first child birth experience 45 years ago next Tuesday!- I don't have pain, just loss of functions.

Oct 13, 2019 · CRPS in Chronic Pain

I too have been fired by many doctors, not for asking questions as much as for stumping them, which they don't like to admit. My Christian faith has provided two doctors for me who actually asked me to be their patient! One asked me when I visited a clinic he supervised. He has been my PCP for 11 years. The other called me on the phone and asked if I would like to see him for pain management. I have been seeing him for 7 years. I believe God, in His incredible way, was responsible. I have yet to meet another who was asked by a reputable doctor to be their patient., much less by two. Both of these men are the same age as my older son and I call them both by their first names.My PCP cares about my physical, emotional, and spiritual being. He sees me for 30 – 40 minutes a visit. He is a D.O. and also provides OMT which is great for me as I have numerous allergies to meds and much prefer his treating my muscle and nerve problems with hands on. Pain Management doctor is exceedingly talented and knowledgeable about so much and is so very current. on methods and treatments. He shows his care for me by avoiding the many things I am allergic to, by his fantastic sense of humor, by his not being intimidated by my many "weird" neurological conditions, and simply caring for me as a person. I feel truly blessed.
My prayer for you is that the right doctor(s) for you will be provided soon.

Sep 12, 2019 · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

Have you heard of complex regional pain syndrome – CRPS? I have CRPS in both feet as well as SFN. Just a thought. See pain management frequently. Just had RFAs done in top of both feet. Looking for relief as well as looking forward to nerve to soles being injected. Spine is fairly well destroyed with arthritis and DDD. Don't think Dorsal Ganglion root can be done. Perhaps using my stimulator may be a way but am not sure I want any more surgery that CRPS can invade!

Sep 1, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

I do not have Mortons Neuroma but I do have Complex Regional Pain Syndrome in both feet. I have a great pain management doc who is brilliant at what he does. He injected the sural nerve with an anesthetic. He hit the spot and now this week I am having radio frequency ablation. With RFA I have had relief from occipital headaches for almost 2 years so I have great hopes to keep the CRPS sharp, lightning pain at bay. The reason I have CRPS is because of 3 surgeries on the same foot. I would make surgery the very last resort.

Aug 28, 2019 · Spinal Cord Stimulation in Neuropathy

What preparation was required? I've had two trials and two implanted. My second implant I had problems because of the Jackson table and the throwing around of my body. I did spend two nights in the hospital.