I appreciate all that you shared and have traveled a very similar path. In addition to exhausting all of the medical options presented to me (I will list them here in case any are of interest: multiple endoscopies (including one with a Bravo study to measure ph levels), colonoscopy, gastric emptying study, barium swallow test, multiple stool tests and lab work, and hydrogen/methane breath test), I also explored the holistic path (black walnut parasite cleanse, DGL, HCL, enzymes, ginger tea, grapefruit seed extract, and much more).
It seems we have found ourselves in a very similar place = our breath smells like poop.
Currently, I have become interested in studying SIBO caused from sulfur producing bacteria (the current test only measures hydrogen and methane) as well as focusing much more closely at specific dietary changes.
I know that meat exacerbates my issues (I can measure this by my kids saying things like "your breath smells like a rotten garbage")
To be clear, I have seen the dentist numerous times as well as an ENT, both pointed me back to the gut.
I am also an athlete (yoga 5x per week), lean body with an organic plant based diet with very little meat.
None of this is working and my GI is unsure of what to do next.
I also went to see multiple allergists and all of the results were negative.
What is interesting about these and related posts is that despite incredibly strong foul smelling breath (which is important evidence that something is wrong) no one has an answer.
Like many of you I now brush multiple times a day. So….how is it that 2 minutes after brushing and flossing others are smelling feces from one's mouth???
For me, all of this began in Costa Rica in 2006. After returning my gut was never the same. Bloating. Reflux. And for the last 5 years breath.