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Feb 23, 2019 · Diagnosed with AL Amyloidosis. What can I expect? in Blood Cancers & Disorders

The ONLY symptom I had that brought me to a doctor was that I had the skin lesion. I don’t know if any of my other symptoms are for sure related to AL Amyloidosis because I’ve had them for so long and this is a new diagnosis. But I’ve had protein in my urine for a while but it’s getting higher. And I’m not sure if this is related, but one of my kidneys has shown up atrophied on an MRI of my lumbar spine. I had them checked out after that and the atrophied kidney is functioning. I just can’t remember if it was at 100%. I’m thinking it was fine since I didn’t get any treatment. This has been 2 years ago. I was diagnosed with AL Amyloidosis less than a month ago.

Feb 20, 2019 · Diagnosed with AL Amyloidosis. What can I expect? in Blood Cancers & Disorders

I've just got my diagnosis of AL amyloidosis today after having a bunch of testing and two biopsies done. I have so many questions, I don't even know where to begin. I am in the Green Bay area and my doctor is sending me to her colleague in Milwaukee to get a second opinion to make sure I don't need any radiation in the area that I had my amyloidosis removed from. I had a skin lesion pop up out of the blue. It was only a spot on my skin and the entire thing was removed. All the tests came back negative but my urine shows way excessive amounts of protein and my doctor doesn't understand why. She said she's never seen Cutaneous Amyloidosis (which is what I was found to have initially) and so she wants me to go see this other doctor in Milwaukee. She also ordered a cardiac MRI and a biopsy of fat tissue just to be sure there are no amyloids hiding anywhere that they missed with any of the other imaging that was done.