Badges (1)


Member has chosen to not make this information public.

Posts (36)

Nov 22, 2019 · CIDP (chronic inflammatory demylinating polyneuropathy) in Neuropathy

Hello, I do feel relief for about a week and by the time for my next infusion I'm so ready. I have had the initial week and 4 maintenance infusions. My doctor suspended the infusions because she thought there was an issue inhibiting my recovery. She referred me to a spine neurosurgeon and she was right. I have spinal damage and now will undergo a spianal myelogram to check how much damage there is. I'm sure I will go back on infusions after this issue is better diagnosed. Hang in because it can take weeks to months to feel better.

Nov 5, 2019 · Undiagnosed, numbness, tingling, Muscle weakness and more in Brain & Nervous System

Have you ruled out CIDP? A lot of your issues are simiiiar to mine and I have CIDP

Sep 3, 2019 · Living with Neuropathy - Welcome to the group in Neuropathy

Have you seen a pain specislist? Mine helps me alot with my pain.

Aug 15, 2019 · Spinal Cord Stimulation in Neuropathy

Hello @scruffy, the DEA didn't forbid it, just warned it was possibly dangerous. The same with other drugs like ambien. Maybe recheck with your doctor.

Aug 8, 2019 · Pain in the butt - Can't sit down in Chronic Pain

Hello, wow so much info to read and understand. The awesome info you wrote does it apply to rectal pain? I have had this pain 24/7 365 for over 7 years and have doctors say its levator ani syndrome to bursitus. The pain is always on the left side. The latest doctor in charge of the pelvic dept said it was bursitus located behind a lot of nerves
She said it's not curable and not one surgeon would operate becsuse the procedue has a very high chance of creating incontinence. I'm still seeking answers. Do u have any advice. Thank you.

Aug 4, 2019 · Anyone been diagnosed with CIDP? It's very rare in Neuropathy

The symptoms most bothersome is the pain and weakness in my legs. I'm now using a walker because I have fallen too many times. I also have terrible back pain.

Aug 4, 2019 · Anyone been diagnosed with CIDP? It's very rare in Neuropathy

Hello jazzy, thanks for replying. Due to the high cost of gamunex they decided to use a generic called panzyga. My cost is 0 but I'll; believe it after a few weeks of not getting a bill. The panzyga seemed to help during the initial first 5 days
But after a couple of days later I'm back to the way i felt. I'm hoping the maintenance dose will help. When you were diagnosed did you get a 2nd opinion? Thx

Jul 29, 2019 · Restless leg symdrome affecting my sleep in Brain & Nervous System

Hello, I have been taking clonazepam and it works well for my legs. Hope your legs feel better soon.