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Tue, Nov 5 1:37pm · Undiagnosed, numbness, tingling, Muscle weakness and more in Brain & Nervous System

Have you ruled out CIDP? A lot of your issues are simiiiar to mine and I have CIDP

Tue, Sep 3 1:11pm · Living with Neuropathy - Welcome to the group in Neuropathy

Have you seen a pain specislist? Mine helps me alot with my pain.

Thu, Aug 15 12:53pm · Spinal Cord Stimulation in Neuropathy

Hello @scruffy, the DEA didn't forbid it, just warned it was possibly dangerous. The same with other drugs like ambien. Maybe recheck with your doctor.

Thu, Aug 8 9:48pm · Pain in the butt - Can't sit down in Chronic Pain

Hello, wow so much info to read and understand. The awesome info you wrote does it apply to rectal pain? I have had this pain 24/7 365 for over 7 years and have doctors say its levator ani syndrome to bursitus. The pain is always on the left side. The latest doctor in charge of the pelvic dept said it was bursitus located behind a lot of nerves
She said it's not curable and not one surgeon would operate becsuse the procedue has a very high chance of creating incontinence. I'm still seeking answers. Do u have any advice. Thank you.

Sun, Aug 4 10:18am · Anyone been diagnosed with CIDP? It's very rare in Neuropathy

The symptoms most bothersome is the pain and weakness in my legs. I'm now using a walker because I have fallen too many times. I also have terrible back pain.

Sun, Aug 4 10:08am · Anyone been diagnosed with CIDP? It's very rare in Neuropathy

Hello jazzy, thanks for replying. Due to the high cost of gamunex they decided to use a generic called panzyga. My cost is 0 but I'll; believe it after a few weeks of not getting a bill. The panzyga seemed to help during the initial first 5 days
But after a couple of days later I'm back to the way i felt. I'm hoping the maintenance dose will help. When you were diagnosed did you get a 2nd opinion? Thx

Mon, Jul 29 9:19am · Restless leg symdrome affecting my sleep in Brain & Nervous System

Hello, I have been taking clonazepam and it works well for my legs. Hope your legs feel better soon.

Sun, Jul 14 11:59am · Pudendal Nerve Entrapment/Neuropathy/Damage in Chronic Pain

Hellon resawaller, I have terrible pain on my left side too from my feet, legs, arms, neck, hands and can barely walk. My diagnosis is CIDP and small cell skin neuropathy. I start infusions on the 22nd. What helps reduce my pain are cymbalta, an opiate, advil, a little exercise and ambien to help sleep. Maybe see a pain doctor to help address your pain. I feel badly for you and wish you less pain. You probably are but be aggressive in seeking medical help to stop the pain. Do you know why your having so much pain?