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May 9, 2019 · Dealing with symptoms from unknown cause in Just Want to Talk

I’ve now had additional monitoring of my heart, including wearing a monitor for a month. They ordered it due to worsening and more frequent chest pain/pressure. Though I felt symptoms while wearing it, they said it showed only mildly abnormal heart rates, nothing that should cause the symptoms I’ve been having. I was also sent to a neurologist, who is sending me for a brain MRI and more labs. My physical exam was mostly normal with just decreased sensation in the face and feet. She didn’t seem to think there was much to go off of, and thought a Migraine medication could help the dizziness symptoms (though no other symptoms). If no tests or MRI show anything, then they’ll be considering next steps. For now, I’m remaining disappointed with the amount of appointments and tests and lack of results. So many people act like I’m just making it up or being dramatic so it feels even more frustrating.

Apr 7, 2019 · Working with a Chronic Illness in Just Want to Talk

I recommend talking with your provider about appropriate accommodations for you, and requesting them at work. It sounds like your current job may not be the best fit though- while they can’t legally discrimate, they can be unpleasant and unsupportive.

If this job doesn’t work out, you could contact your local Vocational Rehabilitation office- they provide free assistance in job hunting to individuals with disabilities.

If working does not work out at all, SSI could be an option. When you’re under 18, your parents income is counted against you (it’s a financial-need program, so they determine how much you need based on income). Once your turn 18, your parents income won’t be counted.

Apr 7, 2019 · Dealing with symptoms from unknown cause in Just Want to Talk

The search for a cause has continued. My PCP has now observed me having a very irregular heart rate but it’s intermittent and my EKGs were normal, as was my echocardiogram. I now have a monitor for 30 days for them to check my potentially heart-related issues and symptoms. I have not had any severe symptoms while wearing it so I’m not hopeful this will lead to an answer unfortunately. I’ve also had some abnormal blood tests but nothings been conclusive. So the search continues.

Feb 25, 2019 · I badly need your help!! Father refusing to drink water in Caregivers

I’m sorry to hear you’re struggling with this, that must be very difficult to handle and stressful with your farher’s health issues.
Regarding the hydration issue itself- will he drink other hydrating drinks, or eat ice cubes or popsicles?
It sounds like it could be helpful to have medical assistance- has he seen the doctor recently? Have you looked into whether he qualifies for in-home care of any sort?

Feb 21, 2019 · Dealing with symptoms from unknown cause in Just Want to Talk

I had another episode at lunch, where I got lightheaded, then dizzy and then the numbness began again. I tried breathing, drank water and it lessened until I walked to my office. I had to leave because I was too lightheaded to work. I’m concerned because these symptoms are impacting my job now.
They got me in for a doctors visit today, and more normal blood pressure tests and a normal EKG. They’re sending me in for an echocardiogram, due to a family history of heart conditions, and I’ve been diagnosed with a heart murmur previously. This doctor seemed more genuinely concerned, but very puzzled. I’m hoping he’ll be able to help find an answer.

Feb 20, 2019 · Dealing with symptoms from unknown cause in Just Want to Talk

Thank you all for the responses. I’m feeling almost 100% but still having some diminished sensation in the hands, and slowing. I appreciate the encouragement to get another opinion; I have an appointment scheduled and hope to get some insight.

Feb 17, 2019 · Dealing with symptoms from unknown cause in Just Want to Talk

While pregnant with my second kid, I started having severe dizziness and nausea. Movement made me very light headed and I’d start feeling ill from it. One week on a trip, I ended up extremely dizzy, fainting and hitting my head. After giving birth, it started getting better. It’s mostly only happened some mornings getting out of bed. No one ever had an answer- they said it’s common in pregnancies and may just be vertigo or other similar issue that they don’t think is serious.

Now 3 months after giving birth, I was struck with major symptoms that almost caused me to crash my car. First the lights (it was night) started seeming so bright I couldn’t see or focus well. The light started making me very dizzy. I had nowhere to pull over so I kept driving. My tongue started going numb, then radiating through my mouth and around face. My hands started to go numb next, and I was finally able to pull over though very slowly.

It’s been 2 days and my tongue and mouth are almost back to normal. My fingers all have some numbness still. Lights don’t bother me as much, but I feel like I have extremely delayed reactions- everything is still just slow like when I had a hard time pulling my car over. My brain seems to be processing slowly- my eyes track things slowly, my body moves slowly, I’m thinking slower.

I’ve been to the ER after the fall and the driving incident. And for regular doctor appointments about it . It’s always dizziness or vertigo and no explanation for the numbness or anything else. They said the numbness is probably stress or anxiety induced but I wasn’t abnormally anxious or stressed either time. And since the symptoms have continued (though more mild) I don’t think the explanation makes sense. My blood tests, blood pressure and EKG were normal and they don’t seem to want to do any other tests. I’m not on any medications and they haven’t recommended any.

How have people handled these situations when doctors don’t listen and you’re given answers that don’t cover all your symptoms and don’t make sense?
I’m also scared to drive now and not sure how to deal with the fear of the symptoms becoming so bad again. How do you manage your symptoms there’s no known cause and so no treatment for?