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Mon, Jan 27 12:01am · GI Disorder and Internal Shaking in Digestive Health

Hi all, thought I would give an update on a diagnosis I got in September of potentially Restless Leg Syndrome. I don't know if it has anything to do with the internal vibrating or not……for me, the relationship seems to be through parasthesia, where I need to move my arms because it feels like they're convulsing. The internal vibrations certainly heighten that feeling. But more often than not, internal vibrations are just the shakes or a crawling feeling so I really don't know. But RLS is the first concrete diagnosis I've gotten

Sun, Jan 26 11:50pm · GI Disorder and Internal Shaking in Digestive Health

Wow @rjk this is really helpful! Just read your post from October 15th as well and the news about the diet is heartening, especially with such intense symptoms. I should try that out and see what happens. Just to reiterate for everyone—my heart is normal and I don't particularly get palpitations anymore. I've started moving around & getting more physical activity in. But the internal vibrations and finger twitching (which I posted about in another group) are still very much there. Parasthesia in my arms showed up again a few times in December, making it hard for me to sleep.

Just last week, I was barely able to sleep because I had internal vibrations all over my body….usually they have just been confined to my fingers. I was able to sleep just fine last night without them bothering me so I suspect it may have something to do with my period, last week, and the gas build-up that usually comes with that. The SFN sounds very plausible though. Literally all my problems seem to connect to my gut health, just like yours. I got a second blood test that tested my liver last week and will be seeing the results tomorrow—will update if it's abnormal.

Will look into SIBO!

(Just FYI—I'm trying to share as much information about my condition as I can so that people suffering similarly can see what matches. Sorry if anything is TMI)

Aug 19, 2019 · GI Disorder and Internal Shaking in Digestive Health

Hey all, MRI came back normal. Both good and bad– good because I guess it means I don't have MS but bad because…..what now? My finger twitching has intensified (at rest) but feels better with writing/activity. Am going to see a neuro in September so will update more then.

@highd if you feel comfortable sharing, did the gynecologist help (don't have to talk about it if you don't want to)? I am also curious, because our symptoms are somewhat similar–have you experienced any finger twitching at all? Hope I can give you some more info after my neurologist appointment.

Aug 11, 2019 · GI Disorder and Internal Shaking in Digestive Health

Oh my gosh, I'm so sorry you're going thru all of this and that those doctors have been so invalidating!!! I know that feeling of everything coming back normal.
I'm also experiencing the internal shaking that's relieved by gas/bowel movements and am wondering if it's MS/Young-Onset Parkinsons (I posted a similar query here which got some helpful responses: I haven't exactly experienced your other symptoms but similar–parasthesia in my arms when lying down, muscle twitching, feeling of something stuck in my throat. The internal shaking is the main thing. I'm curious about the stuck-in-throat feeling and the possibility that it might be linked since you're experiencing it too.
I'm seeing a neurologist in a month and getting an MRI tomorrow and will update you as soon as I can.

I'm NOT a doctor but I've read that Vitamin B-12 deficiency exhibits similar symptoms and was thinking of getting tested for that. Just tossing that idea out there. Hope you find some relief with the gynecologist

Jul 18, 2019 · Finger Twitching in Brain & Nervous System

Wow once again, you've provided some amazing resources. Thank you again, so so much. I started sleeping on my back a month or so ago because I kept waking up with my arm completely numb and having to shake it out when I slept on my side. Good to know that's useful.

My neurologist is from Mayo Clinic and you mentioned in one of the links that Mayo Clinic doctors know about TOS so hopefully he can take this into consideration

Jul 18, 2019 · Finger Twitching in Brain & Nervous System

so sorry you had all those experiences but good to hear you're 90% better! Did the dystonia start with finger twitching by itself and no other symptoms? Or did your dizziness/nervousness/etc that you had as a child predate the finger twitching?

Jul 17, 2019 · Finger Twitching in Brain & Nervous System

Updates! I've started developing parasthesia as I'm lying down to sleep! Super fun stuff! I'm totally not terrified!! More seriously, I've always been able to sleep when my head hits the pillow but now I'm awake for an hour or so because the parasthesia keeps my BOTH arms burning and feeling numb. I'm also kept awake because of the intensity of the internal vibrations, which used to happen only when I was tired or gassy–and even then I'd be able to sleep instantly. There will be times when the tremor in my hands is visible, in both my dominant and non-dominant hand. All in the space of two days!

@tigerlilly I've experienced something similar (tho not as extreme and only in my arm) when my arm will feel like it's about to seize and will jerk me awake. I've managed to schedule an appointment on August 20th after my MRI with the neurologist so that he can identify any nerve conduction tests/EMG/etc. Will update after that.

Jul 10, 2019 · Finger Twitching in Brain & Nervous System

Wow thank you so much for all this information! That tip about correcting posture is super helpful. I'm going to research all the options (and make a diagram) you listed and follow up with my neurologist about potential nerve entrapment or compression. I'll also check out the link you connected. Thank you so much!