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Feb 15, 2019 · Parsonage turner syndrome * in Brain & Nervous System

January 18th – something changed

I woke at 3 am with intense pain in my shoulders radiating down both arms

An ambulance took me into hospital and I was given diazepam to release my muscles.

I returned 2 days later as my voice had gone hoarse, the front right of my neck, numb to the touch and the pain was unbearable in my arms and shoulders in the evening. The pain woke me up at 2 am nightly and I had to bathe to ease the pain

2 weeks on they prescribed gabapentin and the pain is under control

I lost motor functionality in my left arm and now have a winged scapular on my right side.

I am struggling to make my doctors recognise the condition because it doesn’t fit typical symptoms.

I am wondering what steps I should take next because as a fit (well I was) man I am struggling.

To give you an idea of loss of strength on January 13th I could do 3 sets of 8 unassisted dips.

Today I cannot do 1

Very tough 🙁 any help would be greatly appreciated.

BTW I AM UK based so any advice for help in the north of England would be greatly appreciated.