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Feb 14, 2019 · Camptocormia (bent spine syndrome or BSS): Looking for others in Spine Health

I was diagnosed with camotocormina three years ago. If I try to walk without sticks, the rollator or use my mobility scooter, I have terriblellwer back pain. The more I bend over the more mobile I am, even though at a very slow pace and not being able to see where I am going. If I try to look up then I get severe neck pain. The only relief I have from this condition is for a very brief spell when I first get up in the morning or when I am sitting down. though the more I walk the more I suffer from pain and discomfort. I had two MRIs which showed my para spinal muscles have wasted away. Nobody knows why this has happened. I tried physio, but the physiotherapist discharged me as there was nothing they could do for me. Exercise or movement makes the condition worse. Camptocormia has disabled me as I need wheels to get me around. Even the rollator now is of little help. I’ve been told by the neurologist that there is no cure. I have no choice but to live with this disabilitating condition. I do sympathise with you.