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3 minutes ago · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

I'll let you know how it works. Dr. said there are no side effects from the cream.

8 minutes ago · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

Good to know about the 30 days. Yes, I read the Dr. Kopsky report, that's why I requested the cream. John had posted a link to the study.

22 hours ago · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

My dr. called in 5% phenytoin cream. Compounding pharmacy has not called yet to let me know it's ready.

1 day ago · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

Thank you for the link. I am so tired of all the pain in my feet. After reading the study I called my neurologist and asked if they could call in a script for this. They agreed and I can't wait to try it! It is pricey from the compounding pharmacy, $60 for 60 grams. I'll be sure to let everyone know how it works.

Sun, Sep 1 11:28am · Living with Neuropathy - Welcome to the group in Neuropathy

Summertime4, I had the Mortons Neuroma surgery only on my right foot. Today (1 and a half years after) the pain in both feet is still exactly the same, so I did not have Mortons Neuroma. I also had swelling on the top of my feet, and found out too late that Mortons Neuroma does not cause any swelling. It sounds like we are on the same meds, except I also take Lyrica. It now comes in a generic, so it's a lot more inexpensive than it was last month! Maybe adding Lyrica into your mix might help you as well.

Sat, Aug 31 4:09pm · Living with Neuropathy - Welcome to the group in Neuropathy

I was also told the extreme pain in my feet was Morton's Neuroma. I had the cortisone shots, and it definitely helped ease the pain, BUT after only 2 days the pain returned. The dr said that was enough proof for him to do the Mortons Neuroma surgery. I had the surgery done and obviously that was NOT the issue. The pain started returning about 2 days after surgery, even with pain meds. I was on pain meds for about 6 years due to horrible pain in my feet. I can not take pain meds now because drs here do not prescribe them anymore, and pain clinic told me pain meds are not indicated for neuropathy. After more than a year of going to a neurologist I have found something that works for me. I'm not in excruciating pain every second of every hour. I take 5 or 6 Gabapentin 300 mg spaced out during the day/evening, and 100 mg Lyrica 3x/day. The BIGGEST change was when I started taking 40 mg of Nortriptyline at bedtime. I sure hope this information helps you.

Thu, May 23 3:42pm · Living with Neuropathy - Welcome to the group in Neuropathy

Update: I am now on Lyrica (100 MG 3x/day), Nortriptyline (20 mg/night), gabapentin (600 mg 3/day). Is anyone else on this combination of drugs to help with PN? Has it helped? Cymbalta gave me PVC's, abnormal heart rhythm, so I had to quit that suddenly which was absolutely terrible because of the massive depression that ensued.

Mon, Mar 18 11:23am · Living with Neuropathy - Welcome to the group in Neuropathy

GP sends me to pain clinic, pain clinic send me to neurologist, neurologist sends me to GP. Still no relief. Cymbalta gave me heart palpitations & PVC's, so neurologist switching me to Lyrica. Wow, really depressed & in pain from stopping the anti-depressant 3x/day (Cymbalta). Now BP is even higher. Do I even dare to ask about a patch?