About

Member has chosen to not make this information public.

Groups (1)

Pages

Member not yet following any Pages.

Posts (19)

Dec 16, 2019 · Aching legs from Small Fiber Neuropathy in Neuropathy

I want to try Maeng Da from Happy Hippo, how much do you take a day? Wondering how much to order. Thank you! Kristen

Oct 23, 2019 · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

No, I did not notice any side effects. My neurologist said there were no known side effects.

Oct 22, 2019 · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

I had some pain on day 3, but I think it was less than before using the cream.

Oct 22, 2019 · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

Some of this group's members have experienced some relief from pain by using Phenytoin Cream. I am one of those members and want everyone to be aware of the benefits. I have been using the cream (5% Phenytoin cream) 3 times a day for 3 days now. I actually cried tears of joy when I woke up this morning and was lying in bed with no pain in my feet. This has not happened in about 6 years! A compounding pharmacy has to make the prescription cream. I know Pam is using the 10% Phenytoin cream and said it has helped with her burning feet. My neurologist called in my script for 5%. There is a study you can read, John Bishop posted a link to it a few days ago. I sincerely hope all of you find some relief too!

Oct 19, 2019 · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

That's GREAT news! Just tried my first application.

Oct 19, 2019 · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

Pam, The pharmacy just let me know it's ready. Please let us know how it works for you too. Good luck! Kristen

Oct 14, 2019 · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

Pharmacy called, it'll be $16 with co-pay! Ready Wednesday or Thursday of this week. Pam, I'll ask about shelf life, thanks!

Oct 14, 2019 · Ideas for pain relief from Small Fiber Neuropathy (SFN) in Neuropathy

I was tested for Celiac and was negative. I asked my GP because my son was diagnosed with celiac disease about 20 years ago. The diet is soo easy now, with all of the gluten free items. I used to have to make his bread with about 6 different flours (rice, tapioca, etc) in a bread maker used for only gf flours.