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Tue, Sep 17 9:32am · C. difficile -are your guts ever normal again ? in Digestive Health

here is the article from NYTimes. You can google it and read it.

Fecal Transplant Is Linked to a Patient's Death, the FDA Warns
https://www.nytimes.com › 2019/06/13 › health › fecal-transplant-fda

First of all it is clear from the article (and what my friend who has worked in hospital with patients who got FMT said )– that FMT is still available for people who are really ill and might otherwise not make it Perhaps that includes me as I am labeled "immuno suppressed" even though I feel well right now. Furthermore, in regard to less ill people, people who are not immuno suppressed or really really sick, I see that it is not actually saying FMT can't be done for them but that the doctors need to get in place something that guarantees that the transplanted fecal matter has been tested for all drug resistant bacteria. So it's for our safety.

Mon, Sep 16 7:50pm · C. difficile -are your guts ever normal again ? in Digestive Health

I heard that it was reported in the New York Times that two people who were given fecal transplants died and so the FDA has cut back on the number it will allow — and if i understand it right, will only let you get one now if you are really at a terrible place. Have any of you heard this? Have any of you had a fecal transplant in last couple of months.

Sun, Sep 15 12:57pm · C. difficile -are your guts ever normal again ? in Digestive Health

LOW RISK ANTIBIOTICS according to my Gastro doctor, Carl Crawford who is at NY Presbyterian, listed as #1 hospital in NYC so I am hoping he is right.

Here is the list of low risk antibiotics

doxycycline
tetracycline
bactrim
ezithromycin

I posted his list of HIGH RISK ANTIBIOTICS yesterday.

There is also some risk, he said for those who have had an initial episode of C. Diff of taking any of the following two classes of over the counter drugs for acid stomach, gas, heart burn etc.

Proton Pump Inhibitors (like Omeprazole)
H2 blockers (like Zantac)

The Gastro doctor said if you have to take one of these two antacid type drugs, well then you have to take it but avoid them if you can. Also avoid Advil /Ibuprofen because it messes with the biome. None of these are of course as serious as taking an antibiotic.

I am having some success controlling my gas with peppermint tea, Tums, and eating coconut oil when the pain comes on. All of those seem to soothe the stomach. I am terrified of messing with my intestinal biome flora with anything that might disturb it. I guess we all are.

When a doctor prescribes me any drug, I immediately google the drug's name and C.Diff. I did that when i was prescribed Zantac and saw that a Mayo study had just come out showing evidence that taking Zantac may increase risk of C. Diff relapse. I refused to take it.

Sat, Sep 14 8:19pm · C. difficile -are your guts ever normal again ? in Digestive Health

My Gastro doctor said these are the high risk antibiotics. The one I took was Augmentin.

clindyamycin
amoxycillin
amoxycillin -clavulnanate (augmentin, GlaxoSmithKline)
floraquinalons
cephalosporins, 2nd and 3rd generation
azithromycin
erythromycin

Sat, Sep 14 8:14pm · C. difficile -are your guts ever normal again ? in Digestive Health

Here is the list of high risk antibiotics given to me by my GI doctor. It was Augmentin that got me. It is amazing that doctors are still prescribing these to people like me who have risk factors for C. Diff ( like I am 75 and have exposure to hospitals germs).

clindyamycin
amoxycillin
amoxycillin -clavulnanate (augmentin, GlaxoSmithKline)
floraquinalons
cephalosporins, 2nd and 3rd generation
azithromycin
erythromycin

Wed, Sep 11 10:12pm · C. difficile -are your guts ever normal again ? in Digestive Health

@patts From what my doctor said and what I have read on line, people who are pretty much recovered from c. Diff can continue to test positive for c. Diff at least for a while;
and so,as I understand it, one should not be tested for c Diff unless one has active diarrhea. Otherwise they can keep giving you vanco
When you don’t need it and when it is better to let the body do the finishing up job on it’s own. again good luck to you.

Wed, Sep 11 9:01pm · C. difficile -are your guts ever normal again ? in Digestive Health

@patts I know how it feels being scared of relapse. i had to take two courses of vanco back to back. I was very very scared of relapse. I am 75 and my c. diff like yours felt like it came out of the blue, but also like you i had previously taken a bunch of antibiotics. In any case I was otherwise in pretty good health. I lost 9 lbs and like i said I was scared of relapse. A good friend who was a nurse practitioner kept reassuring me that my constitution was basically strong and so I wouldn't relapse. And i haven't and it's been 7 months. good luck to you. I think it is very promising that you haven't lost eight and feel okay and no pain.