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Mon, Feb 3 8:01pm · C. difficile – Are your guts ever normal again? in Digestive Health

Ah i see you talking about the spores. I am just in my first episode if C.Diff and right now what is upsetting me most is the fear that I could reinfect myself with the spores in my own apartment. Do you know if that is possible?

Mon, Feb 3 8:01pm · C. difficile – Are your guts ever normal again? in Digestive Health

THank you @pines for your response to my posting. I am taking vancomyacin . I am washing my hands constantly. What has surprised me is how little information there is about how to protect other people from catching it. I have a nurse practitioner friend who has worked with thousands of hospitalized patients with C.Diff. she says what you said about counters and light switches and washig hands. She also added that from now going forward I should never let a person eat from my plate or use my utensil (I guess because the spores can lie dormant in a host). Did you know that the EPA has a list of products that they approve as effective against C.Diff? I believe they work faster than bleach and water. Again thank you for your response.

Mon, Feb 3 8:01pm · C. difficile – Are your guts ever normal again? in Digestive Health

hi You all, I just am having my first bout with C.Diff. It is quite an experience. I am feeling kind of paranoid about the spores from C. Diff which apparently linger on even after you are feeling okay. What do you all know about disinfecting your home? Do you all do a lot of this?My doctor thinks you can't reinfect yourself. Have you heard that? Would appreciate any help.

Sep 17, 2019 · C. difficile – Are your guts ever normal again? in Digestive Health

here is the article from NYTimes. You can google it and read it.

Fecal Transplant Is Linked to a Patient's Death, the FDA Warns
https://www.nytimes.com › 2019/06/13 › health › fecal-transplant-fda

First of all it is clear from the article (and what my friend who has worked in hospital with patients who got FMT said )– that FMT is still available for people who are really ill and might otherwise not make it Perhaps that includes me as I am labeled "immuno suppressed" even though I feel well right now. Furthermore, in regard to less ill people, people who are not immuno suppressed or really really sick, I see that it is not actually saying FMT can't be done for them but that the doctors need to get in place something that guarantees that the transplanted fecal matter has been tested for all drug resistant bacteria. So it's for our safety.

Sep 16, 2019 · C. difficile – Are your guts ever normal again? in Digestive Health

I heard that it was reported in the New York Times that two people who were given fecal transplants died and so the FDA has cut back on the number it will allow — and if i understand it right, will only let you get one now if you are really at a terrible place. Have any of you heard this? Have any of you had a fecal transplant in last couple of months.

Sep 15, 2019 · C. difficile – Are your guts ever normal again? in Digestive Health

LOW RISK ANTIBIOTICS according to my Gastro doctor, Carl Crawford who is at NY Presbyterian, listed as #1 hospital in NYC so I am hoping he is right.

Here is the list of low risk antibiotics

doxycycline
tetracycline
bactrim
ezithromycin

I posted his list of HIGH RISK ANTIBIOTICS yesterday.

There is also some risk, he said for those who have had an initial episode of C. Diff of taking any of the following two classes of over the counter drugs for acid stomach, gas, heart burn etc.

Proton Pump Inhibitors (like Omeprazole)
H2 blockers (like Zantac)

The Gastro doctor said if you have to take one of these two antacid type drugs, well then you have to take it but avoid them if you can. Also avoid Advil /Ibuprofen because it messes with the biome. None of these are of course as serious as taking an antibiotic.

I am having some success controlling my gas with peppermint tea, Tums, and eating coconut oil when the pain comes on. All of those seem to soothe the stomach. I am terrified of messing with my intestinal biome flora with anything that might disturb it. I guess we all are.

When a doctor prescribes me any drug, I immediately google the drug's name and C.Diff. I did that when i was prescribed Zantac and saw that a Mayo study had just come out showing evidence that taking Zantac may increase risk of C. Diff relapse. I refused to take it.

Sep 14, 2019 · C. difficile – Are your guts ever normal again? in Digestive Health

My Gastro doctor said these are the high risk antibiotics. The one I took was Augmentin.

clindyamycin
amoxycillin
amoxycillin -clavulnanate (augmentin, GlaxoSmithKline)
floraquinalons
cephalosporins, 2nd and 3rd generation
azithromycin
erythromycin