About

First Name
Barb

State/Province
WA

Posts (19)

Fri, Jun 14 5:01pm · Chronic Use of Tramadol in Adult Pain Medicine

I haven’t heard much about a pain pump. I think the only thing I really know is a friend’s doctor was trying to give her one but she was nervous that it wouldn’t work and then she wouldn’t be able to go back to her current prescriptions. My doctor never mentioned it. If you know can you tell me if this is an option from any doctor or is it a specialty from a pain management clinic?

Fri, Jun 14 1:50pm · Chronic Use of Tramadol in Adult Pain Medicine

I disagree with these laws completely. My healthcare should have nothing to do with what some Congress person believes I need. It shouldn’t even be decided by a doctor 3000 miles away from me. Whatever I am prescribed or not prescribed should be up to my healthcare providers and me. I have been on opioids for years. I never run out before I am supposed to nor have I asked for increases in my dosage other than once to get to a level that helped me. Now since my doctor retired I have to travel two hours to a pain clinic to get my prescriptions. I don’t understand the purpose of this because all they do is ask me what my pain level is, then take tests to make sure I am taking them. My new rheumatologist will not prescribe the meds for me because of all the scrutiny. I know some people will disagree with daily use of these drugs but they kept me working for years longer than I would have been without them

Mon, May 13 5:35am · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

Please don’t give up. If it is temporal arteritis the consequences for going untreated can be devastating. Also I hope you can seek a second opinion. I see someone else warned you about not relying on a ultrasound. I was also told that an ultrasound would not show if you have this disease. I was told that a biopsy is the only definitive way to diagnose this problem. Best of luck to you

Mon, May 13 5:26am · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

I was diagnosed with giant cell arteritis/temporal arteritis over 3 and a half years ago. The steps your dad’s doctor has laid out for you sounds exactly like what happened to me. First I would like to ease your fear about anesthesia. I was just given shots in the temple to numb the area and the doctor took the biopsies and stitched me up. So far that has been the easiest part of this disease. I was put on 60mg of prednisone before I ever had the biopsy and have to say that I felt better within 48 hours. The problem comes when you have to reduce the dose of the steroids. I did fairly well until I got down to 20 mg. After that through trial and error We have learned that if I go down more than 1mg a month or sometimes 1/2 mg I start to have more inflammation and pain. I have been on a new drug for about a year now called Actemra which is a shot one day a week . The theory was that maybe it would allow me to get off the prednisone quicker but that has just not been the case. The up side is my bloodwork has been great while using the shot, but I still have relapse type issues but without the corresponding rise in c-restive protein or seed rate.
I wish your dad all the best

Wed, Mar 13 11:31am · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

I somehow lost the post I had been writing you. Having a normal biopsy doesn’t prove that you don’t have GCA. I had been on prednisone for a few weeks before they scheduled my biopsy so mine also came back as normal . My rheumatologist said that the clearest sign that I had GCA was that within a a few days of being on prednisone I felt so much better. Hang in there and if you feel like the doctors aren’t listening make an appointment with another one. Having a good working relationship with your doctor can help you get through a lot of the ups and downs
Sorry if I posted twice on this. I just can’t find the first one

Sat, Mar 2 9:34pm · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

I have also had problems lowering the dose of prednisone. I have had so many problems that After I got to 15mg my doctor had me go down 1/2 mg a month. I made it down to 7 mg and again felt so horrible that I went back up to 12 with my doctors approval. I am now just at 11.5 mg and am back on the 1/2 mg a month reduction plan

Sat, Mar 2 12:01pm · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

I have not but my rheumatologist always asks if I have experienced jaw claudication since I have last seen him. He also checks to make sure my temples aren’t hardening or swollen. He says it’s a sign of relapse so maybe the 60mg isn’t controlling the GCA?? Once they put me on 60mg I felt so much better within 48 hours. Have you had anytime without symptoms? So sorry you are going through this.

Fri, Feb 22 12:06pm · Adjusting to life with temporal arteritis in Stroke & Cerebrovascular Diseases

I neglected to say that I have both PMR And Giant Cell Arteritis so the tender spots on your head sounded very familiar