Thank you so much for responding. Much of what you report about the symptoms you have are very familiar although I do have some differences. I think that will be the case with any one of us that has gone through this hell. I do have a primary care provider., a rheumatologist, endocrinologist, a cardiologist and go to a pain clinic. I was really hoping that “post interferon syndrome” would be the magic answer that would lead to one doctor that would have one treatment that would “cure” this illness, but that sounds like it is a dream that will never happen. I have tried cpap with no luck. I had to smile at your remarks on post exertion malaise. That is a term have never heard before but definitely can relate to. I know that every time I spend too much energy I may pay for it during the following days. I was also amazed at your comprehensive list of symptoms. It is much like what I suffer from with just a few differences. I don’t suffer from 5, 6, 17 or 19 and was so glad to hear that I am not the only one that can’t read for pleasure anymore. As a lifelong book lover that has been one of the hardest things for me to come to terms with over the years.
Thank you again for sharing your thoughts. It does help to know that one is not alone in this world