About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (12)

Sun, Mar 10 12:45pm · I have ovarian cancer in Gynecologic Cancers

Hi @pauldale4, I really agree with @colleenyoung. I don't think it's selfish to be selective. The wisdom comes in knowing when to step away from too much and what information to give credibility to. Thank you for all your prayers for us "teal sisters". It's always good to remember we're not in this battle alone! 🙂

Sun, Mar 3 1:41pm · I have ovarian cancer in Gynecologic Cancers

@susu2 Hey thanks, sorry to hear about the brain fog and balance issues. 🙁 I have been blessed there, I haven't really experienced that, but I hear, like you it's somewhat frustrating. Glad you're taking it in stride and at least marking the positives – no nausea and loss of appetite! Maybe the walker will provide a bit of independence and keep you moving to try to push that fatigue. I've been going to bed early and learning to make the best of the times I do have more energy. I imagine you do the same. Well…onward is right.

Sun, Mar 3 11:36am · I have ovarian cancer in Gynecologic Cancers

@travelgirl Hi, I too just returned from traveling, so sorry for my slow response. Wow, 2 diagnoses within a week must have been overwhelming. I like your spirit! I do agree, a resilient state of mind and hope goes a long way! I just retired from school counseling due to the high crisis stress and the side effects and wanted to proactively take some steps to be healthier and happier. I set some goals, one being certified as an animal therapy team with my dog, Marshall, which I did. We're seeing kids weekly when I'm in town and love it! The rest of the time, I'm finding how to "stay busy" in a good way.

I have to fight my urge to get online to research to find the next option if these meds stop working, especially when I start feeling new symptoms or something feels off. But you're right, it never leaves me in a good place. I end up doing it all over again with the docs once a change is needed so I really don't need that extra stress. I find myself wanting to ask questions that doctors or researchers just can't answer at this point. I need to remember what my first oncologist said when I asked him about statistics, "What does it matter, you happen to be "one" and no one knows where your "one" will be on the charts." lol, I can so understand your brain hurting! Sometimes it's paralyzing and I just throw the thought of it behind me!

Thank you for the link! I'm definitely going to check out the exercise and look into yoga. I previously adapted (had a stroke at 18 years and have right side weakness with arm/leg) a bit of yoga at home.

My next appointment is the end of March for labs & treatment and my scans to check on the status of the cancer is the end of April. I was really blessed last week, my counts were so low I was told we may have to skip treatment, but they shot up this time. I'm saying it's the sunshine in Florida 😉 on my trip and prayers that gave a boost to the ol' immune system! That way if they bottom out again, it's a great excuse for another sun and sand vacation. lol 🙂

Hey, thanks so much, Jackie. I really appreciate your time to share your journey and advice.

Best wishes and blessings!
Leann

Mon, Feb 18 7:42am · I have ovarian cancer in Gynecologic Cancers

Oops.. I posted twice. Read the 2nd, I fixed my errors. lol. 🙂 @susu2

Mon, Feb 18 7:40am · I have ovarian cancer in Gynecologic Cancers

Yes, @susu2 it has been a long haul. That's ok, I'm new to the Mayo Connect so Im a little awkward on how this works. Yes, I was diagnosed in 2002 with borderline ovarian cancer Had debulking surgery then monitored. I thought all was well until 2014. it reoccured as low grade stage 3C- terrible abdomen pain, went to ER where they found another tumor. They did debulking surgery again, went through radiation. Low grade Is a rare form of ovarian cancer, typically slower to grow, but resistant to many typical treatments. Then in 2015 it had spread through my lymph nodes, stage 4. I went on letrzole then, but last year it stopped working. Then my current meds- Kisqali and fulvestrant. So, that's my story. Yes, sure I'd like to stay in touch. Glad you're pushing through the fatigue enjoying life! I have 2 boys, one's married living near Chicago while his wife completes grad school. The other is in KC for now, but he's my traveler. Fatigue gets me too, I also have swelling and pain from lymphodema on my left side and effects from a previous stroke on the right along with my heart defect that makes the fatigue worse. The meds cause my joints to ache too. But, I still get out and do therapy dog work, -visit my kids, travel with my husband, etc. I run back and forth to Mayo for my heart and cancer issues. Well, take care and thanks for making contact. I sure wish you the best!

Sun, Feb 17 10:04pm · I have ovarian cancer in Gynecologic Cancers

Yes, @susu2 it has been a long haul. That's ok, I'm new to the Mayo Connect so Im a little awkward on how this works. Yes, I was diagnosed in 2002 with borderline ovarian cancer Had debulking surgery then monitored. I thought all was well until 2014. it reoccured as low grade stage 3C- terrible abdomen pain, went to ER weather they found another tumor. They did surgery again, went through radiation. Low grade Is a rare form of ovarian cancer, typically slower to grow, but resistant to many typical treatments. Then in 2015 it had spread through my lymph nodes, stage 4. I went on letrzole then, but last year it stopped working. Then my current meds- Kisqali and fulvestrant. So, that's my story. Yes, sure I'd like to stay in touch. Glad you're pushing throug the fatigue enjoying life! I have 2 boys, one's married living near Chicago while fis wife completes grad school. The other is in KC for now, but he's my traveler. Fatigue gets me too, I also have swelling and pain from lymphodema on my left side and effects from a previous stroke on the right. The meds have my joints ache too. But, I stil get out and do therapy dog work, -visit ny kids, travel with my husband, etc. I run back and forth to Mayo for my heart and cancer issues. Well, take care and thanks for making contact. I sure wish you the best!

Sun, Feb 17 7:36pm · I have ovarian cancer in Gynecologic Cancers

Thank you @lisalucier, it would help to hear some perspective if there are some commonalities as to what to expect.

Sun, Feb 17 3:01pm · I have ovarian cancer in Gynecologic Cancers

Hi @susu2susu2 , I'm glad it's not attached to organs and you're able to try chemo. It was Stage 3C at original diagnosis for me, however, since 2014 its it's been Stage 4. I ended up in ER over painful stomach issues and that's when they found it reoccured. I'm constantly in treatment since then. I certainly wish you well.