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Mon, Sep 30 9:41pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Barbara – I wonder why only one bag was better? But good results are welcome! Fluid retention can be painful and decrease activities levels, I'm hoping you don't have that with the one bag. I have my next dr visit next week and will see what my WBC is doing, hoping for it to increase to normal

Thu, Sep 26 9:26pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

smora1, I had many blood tests and vitamin C didn't come up as deficient, although vitamin B-12 and folate were recommended. I do believe vitamin C is important and use high vitamin C foods frequently.

Wed, Sep 18 8:24pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Barbara – if you have to go 2 weeks at that level, then I wish you the best 2 weeks with enough energy to go about your day and I hope you find something you can do to enjoy the time to your next infusion.

In my situation I'm doing ok on the venetoclax but they gave up on my neutrophils and I'm below normal. Since I didn't get sick or have a fever they think I'm ok the way it is with below normal white blood count (nothing needs to be done about it yet).

Sat, Sep 7 1:09pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Barbara, please take care of yourself. Your platelets are too low and WBC is below normal. HGB is way too low as you know. The danger is that you're getting less oxygen to your organs and more likely to get an infection. I understand not liking the hospital and I think your levels are going down so fast that is why you were asked to go to the hospital. Are you there right now?

Sun, Aug 25 8:26am · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Barbara, we have a ferral cat that I named Sneaky Kitty (because it is so afraid of people it hides) Sneaky shows up for meals and I hope one day will not run off when I'm near. I still have neutropenia on venetoclax. Reduced dose didn't correct it up to now. WBC is low, all other numbers are good. .Cold and flu season will be very dangerous on a low WBC

Fri, Jul 26 7:52pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Hi Barbara – I think I would have been very scared to find all the doors open and lights on! I'm glad you are ok again. Those infusions seem to be very hard on your circulation.

I've reduced my venetoclax dose due to it is killing too many of my B-cells and now I'm being monitored every other week and told I have neutropenia. I'm now scared of all germs because there's less white blood cells to fight it off. I do feel much better though than when I was on imbruvica in terms of energy.

Thu, Jul 4 3:26pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Barbara, I'm so sorry to read you were let to go down to Hgb 5.4. Truly you are brave to have to go through this, and I'm so glad you got the transfusion in the nick of time. I hope you are able to enjoy going for walks again without so much pain and that you have energy to enjoy things in life. I wish you a Happy 4th of July !

Tue, Jun 18 7:07pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

I still feel so sad that they think that low number is "too high". Barbara you are so strong to put up with that