About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (36)

6 days ago · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Hi Barbara – I hope you can get on your account again, and I'm glad to hear you're doing well given the limitations of the transfusions. I'm still doing well on venetoclax

Sat, Nov 16 11:17am · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

I'm thinking about you Barbara, I hope you are okay

Wed, Oct 16 9:43pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Barbara I'm glad you stuck up for yourself and what you needed. Good!

Mon, Sep 30 9:41pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Barbara – I wonder why only one bag was better? But good results are welcome! Fluid retention can be painful and decrease activities levels, I'm hoping you don't have that with the one bag. I have my next dr visit next week and will see what my WBC is doing, hoping for it to increase to normal

Thu, Sep 26 9:26pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

smora1, I had many blood tests and vitamin C didn't come up as deficient, although vitamin B-12 and folate were recommended. I do believe vitamin C is important and use high vitamin C foods frequently.

Wed, Sep 18 8:24pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Barbara – if you have to go 2 weeks at that level, then I wish you the best 2 weeks with enough energy to go about your day and I hope you find something you can do to enjoy the time to your next infusion.

In my situation I'm doing ok on the venetoclax but they gave up on my neutrophils and I'm below normal. Since I didn't get sick or have a fever they think I'm ok the way it is with below normal white blood count (nothing needs to be done about it yet).

Sat, Sep 7 1:09pm · B-cell prolymphocytic leukemia (B-PLL) in Blood Cancers & Disorders

Barbara, please take care of yourself. Your platelets are too low and WBC is below normal. HGB is way too low as you know. The danger is that you're getting less oxygen to your organs and more likely to get an infection. I understand not liking the hospital and I think your levels are going down so fast that is why you were asked to go to the hospital. Are you there right now?