Member has chosen to not make this information public.


Member not yet following any Pages.

Posts (2)

Feb 1, 2019 · Interstitial Cystitis - I would like to connect with others in Kidney & Bladder

I’m sorry you have suffered so long. I just started to develop IC around Thanksgiving and have been in extreme pain since. No flares…just constant and cannot imagine living further like this. Do you have flares? If so , how long do they last? Any suggestions for relief? I’ve been doing bladder installations with minimal relief.

Feb 1, 2019 · Anyone out there diagnosed with Pudendal Neuralgia? in Brain & Nervous System

Does anyone know how they, (the med world), differentiate between puedenal pain vs interstitial cystitis? I haven’t received either definitive from my clueless mayo EC care. They just keep offering me bladder installations and leave me to finding guidance via google :(. The nurses tell me “they’ve never seen a patient condition like mine at age 40.” Sorry new to Connect and not sure how this works.