I am writing here today because I have a medical problem that is extremely painful for me that doctors have not yet been able to diagnose. I am hopeful that someone here with similar symptoms can recommend to me some additional testing that would help to identify the problem. Any advice would be greatly appreciated because this is really becoming unbearable for me. I am a female, 30 years of age with no prior serious medical issues.
My pain started near the end of October, 2018. I hadn’t been doing anything out of the ordinary but one evening I started to feel internal pain deep inside my back starting from my lower spine (sacrum) downward to my tailbone, and spreading deep in my buttocks (primarily the left one).
My buttocks in general is extremely sensitive. Physically pushing up on my buttocks causes the pain to increase greatly, and even just a light touch to the skin when i lay on the side and i touch over the skin I feel a pins and needles sensation and almost like a burning feeling.
In the beginning the pain would only disappear when I would lay down (on my back or side) in bed. It was impossible for me to sit straight on a chair due to the stabbing pain that I feel internally. I felt like I needed to keep my body straight all time, feeling the need to put a hand on something to help keep myself standing straight to avoid the pain. I can’t wear tight pants or anything that puts pressure on my buttocks. Even underwear is an issue.
In addition to the pain I have some other symptoms as well. I have begun to feel very weak, tired, and my muscles, bones, and joints hurt. It is becoming harder to use my hands and my arms feel heavy. My fingers feels clumsy and it’s hard to keep things in my hands. It’s becoming more difficult to walk normal because of the pain and I feel like I am losing coordination of my body.
I feel thirsty all the time, and I have a tingling sensation as well as shaking in both feet. They are also always cold. All of this is having an effect on my sleep and it is hard for me to get comfortable in bed.
While at the beginning the pain in my lower back / buttocks was intermittent, now it is constant. When I sleep I feel like there is something pulsing inside me. Any touch to my skin triggers a sharp pain in my left buttock.
My stool has changed as well – sometimes it is extremely dry and hard, while other times it is normal. I recently has a mucus discharge from my rectum as well, but this was a one time occurence. When I need to use the washroom the pain is greater.
Finally, this past month my menstruation came 5 days earlier than normal and has never stopped for 3 weeks now, although there is less blood than my usual cycle.
I have been to see about 10 different doctors now and have been through a multitude of tests as follows:
– Ultrasound of abdomen – doctor said she thought she saw a perianal abscess and recommended an MRI to confirm
– Pelvis MRI – nothing observed out of the ordinary
– Cocco-femoral and sacrum MRI – nothing observed out of the ordinary
– Lumbar MRI – nothing observed out of the ordinary
– Several blood tests – blood is normal except for slightly high cholesterol
– Rectosigmoidoscopy – Normal
– No sign of hemorrhoids, no visual issues with my anus
– Normal blood pressure, normal heart rate
– Gynecologist exam – Told me the menstruation issue is not related and can sometimes happen due to a hormone irregularity
The symptoms seem to me like this is a problem with my nerves or some sort of infection in my intestines but the MRIs and other tests don’t show any inflammation there. The doctors are telling me that based on the test results and scans that I am just fine, but I am most certainly not.
Does anyone here have a similar problem as me and if so can you please let me know what tests you did so that I can request my doctor to have them done? I really need to solve this – it is really becoming unbearable.
Thank you so much for your help.