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Sat, May 4 5:19pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I would try a complementary medicine doctor – my doctor is on the ball, and she does not use over the counter stuff – but the best researched quality – specially tailored for me and my situation.

Sat, May 4 5:16pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

spencersok – After 8 months coughing violently, and being diagnosed with MAC, my complementary medicine doctor Dr. Elen Apthomas at the Medical Sanctuary in Ashmore, Queensland, Australia, initially gave me celery juice 300 mis 30 minutes before food in the morning, a B12 injection, a supplement called SAMe, a Bio zinc formulation, and a high powered probiotic. I stopped coughing quite quickly – 3 to 7 days, even though I am taking the big 3 drugs for 18 months. I take these preparations on the days I am not taking the antibiotics – 4 days per week. I think you could shop around for a complementary medicine doctor. Dr. Andrew Weil in the USA would fall into that category. So far after 3 months taking antibiotics, other than needing an afternoon snooze, I have had no side effects. The supplements my doctor gives me are mostly only available to doctors. My lung specialist, does not give these supplements a lot of credit, however he does tag her in my regular blood tests. Every three months Dr. Elen changes what I am taking – with the goal of improving my immune system. I am paying Dr. Elen around $400 every three months – cheaper than a funeral. 🤪😆🧐

Fri, May 3 10:13pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Nannette – 300 mls celery juice – freshly squeezed -30 minutes before food in the morning, SAMe200 (Klaire Lab) – SFI USA Reo NV89521),BicoZn (BioMedica brand), Ultra Flora SB Dysbiosis Control – (Metagenics). I go back every 3 months, my complementary medicine doctor also gets a copy of the blood tests I have monthly. My complementary medicine doctor – also a surgeon is Dr. Elen Apthomas – The Medical Sanctuary – Ashmore Queensland – you will find the Medical Sanctuary online. I had a weird eye thing this morning and looked it up on the net and will contact my lung specialist on Monday – the net suggested it was Kaleidoscopic vision – so maybe a visit to the eye specialist fairly quickly. It has passed within a few hours. 3 months on big three and Dr. Elen changed me to celery juice 40%, beetroot juice 30%, carrot 20 %, lemon 10% – 30 minutes before food in the morning. I take the supplements on days I am not on the big three.

Fri, May 3 2:59pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I have been on the big 3 for 3 months now. Because I have a doctor who is into preventive medicine – apart from my lung doctor, she stopped my cough last August within three days with supplements only she can get as a doctor. Find a doctor who is into preventive medicine – my blood tests show no damage to my organs. My lung specialist does not particularly approve or disapprove, and probably mentally pats me on the head. However my doctor on the Gold Coast is right on the ball. I coughed violently for 8 months, stopped within three days of seeing her, and have barely coughed since. I am tolerating the big three surprisingly well, and on the other days taking Dr. Elen's supplements. She gets them from New Zealand. By the way I am on the Gold Coast in Queensland Australia.

Sat, Mar 2 6:05pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

@janovr. I have a 2nd doctor into natural medicines, apart from the lung specialist. She put me on 400 mls celery juice, 30 mins before food and a supplement called SAMe and a vitamin B12 injection. I stopped coughing within 3 days after 7 months violent coughing. As of a month ago, I am now one month into the 3xantiobiotics and so far no side effects. I am also taking probiotics she prescribed morning and night on days I am not taking antibiotics. I am sleeping well. I am 75, exercising, and snoozing afternoons with a good book. I live on the Gold Coast Australia. My lung doctor is aware of the supplements I am taking.@

Sun, Feb 3 5:13pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

– – I have a hole in my lung big enough to put your thumb inside with thick edges. So will continue with antibiotics – does positive thinking help with side effect of medication. 🤣🤣🤣 Any thoughts on those of you who have walked the path.