Hey guys, been a while. Had a follow up MRI done and the tumor has progressed into the soft tissue. We also found that the tumor in my brain has regressed, at least that's good news. I am still struggling with the doctors in my area as none of them know what to do. I am beyond frustrated. I still have constant discomfort; I limit my daily activities or else risk having to lay in bed, sobbing, because the pain is so much. I have relayed this information to doctors, and still, they will not provide me with anything for pain relief. I am currently on gabapentin and Celebrex. They help to an extent, however, when it gets really bad, it doesn't help at all.
I have had several vision tests done and the results vary. I keep asking if they want me to strain or not to see (which causes more pain from trying to focus) and they won't give me a solid yes or no. So, it seems to run anywhere from 70/20-90/20.
@andavis1189 when was the decision made to remove that nerve? I have mentioned several times to doctors that I'm at the point of just one of the eye removed.