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Posts (7)

Wed, May 29 5:55pm · Video Q&A about Gynecologic Cancers in Gynecologic Cancers

Hi Odette,
Hope You are doing well and this email goes just to you, Odette. Thank you for your informative posts, I enjoy reading them.

I have a question for you. Are you on some type of maintenance therapy since you finished chemo? My gyn suggested me to discuss Avastin therapy with my new gyn in Washington ( it's my primary residence). I left Tucson (snow Bird) soon after finishing my chemo, 6 cycles.

I have Apt with my new Gyn on 13th this month and I will hear what he says about maintenance thrapy. In the mean time, I like to find out what other people are doing for post chemo maintenance. I eat plant based diet mostly, do yoga and Zumba, walking, and playing on my harp.

Fri, May 17 3:20pm · I have ovarian cancer in Gynecologic Cancers

Wow that is outrageous. How much copay is for Avastin? My gynaecologist also recommended it to me for maintenance. I'll discuss it at next appt with my new gynaecologist.

Fri, May 17 3:08pm · I have ovarian cancer in Gynecologic Cancers

I'll have my follow up care in Lacey Wa. Then go to Tucson in Oct. and continue whatever is necessary in this cancer journey. In Dec 18, I had surgery hysterectomy and oophorectomy at St Mary's in Tucson. My oncologist said, I am cured. My last CA 125 was 6. But being diagnosed with occc is never easy.

Fri, May 17 12:47am · I have ovarian cancer in Gynecologic Cancers

Hi Rochell, my name is Miyong. I am also snow bird from Wa. Just came back from Tucson. Completed chemo and my next check up is June 13th and I am concerned about aggressiveness of OCCC.

Fri, Feb 1 11:02am · Rare cancer: ovarian clear cell carcinoma in Gynecologic Cancers

Hi Odette,
This is Miyong in Tucson. I a snow bird from Wa St.
Been treated for occc at st Mary's for 2 months. Had surgery and on 2nd round of chemo. I love being in Tucson for winter.

Fri, Feb 1 10:31am · Rare cancer: ovarian clear cell carcinoma in Gynecologic Cancers

Thank you so much Colleen. Miyong, first timer here.
My oncologist said, 6 round is the plan. Now i am having rashes joint pain, 4th day into my 2nd treatment of Paclitaxel/Carboplatin. I lost 2/3 of my hair so saved off the rest.
No i haven't attended that special Yoga. Will check it out.

Thu, Jan 31 9:32am · Rare cancer: ovarian clear cell carcinoma in Gynecologic Cancers

I am DX with clear cell stage 1c, grade 2. Had total hysterectomy. Had my 2nd chemo 2 days ago. Only side effects i have is a bit of numbness on my finger tips and toes. Doing yoga and walking for 40 min every day seems to help. Hope you get excellent care from your medical team.