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Tue, Aug 13 11:57pm · scar tissue after knee replacement in Joint Replacements

I am so very sorry for what you are going through. Had TKR almost 7 mths ago. Problems too, but I work the heck out of it to keep from getting scar tissue. Its still swollen and feels like it moves the wrong direction and a doc here said he thought the implant was to large as I am petite. I think he is right. My surgeon keeps saying "Its fine" so I have seen two others for second opinons. One doc on a recent trip to Mayo….but I had to fight to get to see the ortho I wanted and that will be the one who does my other knee….not staying in my state and letting them screw up the other knee! I had a surgeon friend tell me the "won't see you for a year, its still healing" line is because most states have 1 year statute of limitations if the patient has to have other surgeries due to first not being done correctly. I talk to many others who have had TKR and are back out playing tennis in 6 mths and others who tell me horror stories. It all comes down to you, the patient, not accepting their excuses and being a tenacious advocate for yourself. I would not be walking today, if I hadn't refused the 15 surgeons excuses, "Oh you are in pieces after your surgery and none of us know how to put you back together again. Sorry but you will have to live in a wheelchair." My response was, "oh no I won't because I'm going to find a surgeon who knows how to put the pieces back together again!" And, thank the Lord I did find two ortho trauma surgeons at Mayo who had ideas of how to do it and, even tho the said the odds were stacked against me, they agreed to give me a chance to get my life back again. We had many hurdles to climb, but I refused to give up because I knew I would walk, hike, swim, travel and take care of myself again. Don't give up, keep researching to find a doc who might have other ideas and can help you. Good luck friend.

Mon, Jul 15 8:47pm · scar tissue after knee replacement in Joint Replacements

Acupuncture worked well for me as he was able to ease the spasms in my IT band, lower back and hip. Also strength training on the machines at fitness center, using exercises given to me by my PT have helped. I walk for at least 40 minutes 5 days a week to exercise my dog (and myself), but I have to take extra care to not fall as this whole experience has caused me to have balance issues, which is really frustrating. The tightness is still there and I can feel the popping in both the lateral portion of my knees and also in my sacrum and mid hip. No MD's here can agree on what is causing this…..I've seen 4 now with so many MRI's I probably paid for the machine by now!
I called Mayo Ortho and am seeing an MD that, hopefully, can tell identify the problem and "fix" it and (praying!) I can then solve my balance issue and resume my bucket list. I am petite and my implant is huge in comparison to my other knee. When I asked my surgeon "who choses the implant size?" He replied, "Oh the rep for the company is in the OR and chooses the right size"!!!! One of my doc's said the issue has to be that a nerve is impinged, most likely in the lateral area of the knee….I bet he is right. I will let you all know what the doc's at Mayo say and/or do. (Back in 2002, I needed a 2 level fusion of my lumbar spine and the surgeon in my city turned out to be on drugs and shattered my pelvis, literally in pieces and left me to die when he nicked my glutial artery and I began loosing alot of blood. My anesthesiologist and the hemotologist on call saved my life. Surgeon was gone in a flash never to return again. I went to 15 of our area's best spine surgeons said there wasn't any way to rebuild me and "you will live your life in a wheelchair". My reply was "Oh no I won't!" and I asked the good Lord to lead me or heal me. He led me to an incredible surgeon and his team at Mayo who gave me a chance to walk again, even tho they told me it was only an 8% one, and it was so invasive to the human body that I had a 50% risk of not surviving the surgery. I knew the Lord had chosen these doctors to heal me and He would work through their hands. I never doubted for a minute that I would walk again. It was a huge operation, and ended up being 4 operations as I wouldn't let them give up on me when a few " monkey wrenches" were thrown on our path. My Mayo surgeons and their team, who literally figured out a way to give me my life back were unbelievably talented, creative, determined and caring in successfully rebuilding my broken body. After 5 weeks, I was allowed to begin using my scooter, then onto a walker, then crutches and/or walker and finally after 3 more months, Dr H and his team met me in a room at St Mary's and he said, give me your crutches and walk across the room. No pain, no limping…..I was rebuilt just as God had made me. It had been a long journey, not so much for me, but for all my phenomenal, dedicated doc's and nurses as well. Dr H looked down at me, (he's very tall and I am short), and said "You know none of us thought you would ever walk again but you kept telling us "God won't leave me behind because he led me to you" and we should not give up either as he was working through our hands. Well, you have something to that God thing of yours as we all agreed if you did ever walk it would be a miracle"
So, don't ever give up. Keep searching for the answers, pray to your God asking to be put on the right path to find complete healing for yourself. Believe your knee will be restored and you will no longer have pain. For if we are not our own tenacious, advocate how can we find the healing we desperately need. We may have to have patience as it may or may not come right away, but with a strong postive spirit (which is hard when you hurt and can't do what you want to right now), I believe we can all be healed.

Sun, Jul 7 9:56pm · TKA needed with existing femoral rod/nails in Joint Replacements

PS I am very athletic as well, and had my first TKR in Feb. I will need the other knee done as well eventually, but I am going to Mayo to see if I would be a good candidate for the stem cell replacement procedure next time. My knee is not functioning like my other knee and a ligament was pulled loose during the surgery….needless to say, I am heading up to my Ortho's at Mayo to get their opinion and see if they can repair it.

Sun, Jul 7 9:52pm · TKA needed with existing femoral rod/nails in Joint Replacements

My Mother had a femoral rod put in her leg AFTER she had her TKR however. She was 68 when had TKR and 74 when fractured her femoral bone just below the hip bone. SHe was doing fine, but was extemely independent and decided to build a new home on coast of SC. She knew no one and was still under her orthopedic surgeons care in Lexington. My brother lives 750 miles from her new home on the east coast and I live approximately the same so it wasn't like we were near to help her. She didn't finish her femoral PT before she moved either, which very much concerned me…but she was stubburn so what can you do? Within 2 mths of moving to her new home, she fell and (get this) broke the titanium rod in her leg….and then after redoing that surgery, she fell again 4 mths later and did it again. At that point, I went down to live with her and between myself, her wonderful SC orthopedic surgeon, her PT and my brother who played the "bad cop" when need arose, I had her going to PT 5 days a week, walking with her walk around the neighborhood, water walking 4 days a week in the pool until I finally got her walking 2 to 2.5 miles on the nature trail every evening when it cooled off. (That was probably the longest distance she had walked in 20 years! She looked great, her muscle tone had dramatically improved, etc etc. She did suffer from seasonal allergies and was prone to get bronchitis in the Spring, and SC is particularly high pollen area at that time of year. Her Ortho surgeon was very pleased with her dramatic recovery and didn't feel her TKR 6 yrs earlier had played a part in her breaking the femoral rod…rather, lack of muscle strengh, causing balance issues and not finishing her PT the first time seemed to be the culprit. However, I agree with Debbra, I would get a second opinion. I am a long time Mayo patient for extensive orthopedic issues, and if you are able, I would highly recommend seeing the docs there for you second opinion. God speed and good luck

Tue, Jun 18 7:25pm · scar tissue after knee replacement in Joint Replacements

Hi Doodles…My PT, who is excellent, and has been working with me for the last 5 months. Also, other Pt's who I know and trust their opinion, have agreed as well as my extemely knowledgeable IMed doc. For movement, I walk, stretch, use the weight machines doing the strenth training my PT gives me, accupunture (really helped with the painful bands), I do the recumbant bike (warm up on Airodyne first), water exercises and continue to push my knee for full ROM. For pain, Tylenol 500 (two) every 6 hrs as needed, Skelaxin (muscle relaxant) for spasms and for extreme pain Vicodin 5/325, one to two tablets. Also, I ice, ice ice and go to accupunture for management of pain. Honestly, knowing my body very well, having a very high pain threshold and having excellent mobility, I try to remain hopeful, yet I am going for second opinion and think I will need a replacement again. Also, because I am petite, the implant is huge compared to my right knee, and since my surgeon said he lets the rep chose the size implant for his pts, I'm wondering if the rep just stocked med, lge and extra large! Hope this helps. Good luck to you.

Tue, Jun 18 6:53pm · scar tissue after knee replacement in Joint Replacements

Hi Debbie64131 Since the bands between my knee and my hip were virtually "locked" and nothing worked to relieve it, I went to my accupunturist and he put the "needles" into each of the pain points on the bands that I knew were there, he also found 3 that were moderate and treated them as well. He "cups" the needled areas to bring the bloodflow to the point of pain, (which for me, usually has a huge nodule that defines them). He also treats the areas on my body that he knows need management treatment. Within 4 treatments to my left leg (TKR leg) the bands relaxed and I finally got relief. Because I can still feel some of the nodules, altho they're now small, I continue to have him treat them with management once a month. Accupunture has always been an excellent source of pain relief for me if done correctly. If you can find a "Community Accupunture"therapist, they are dedicated to make the treatments affordable for everyone and have sliding scales. In my city, they change $15-$35 and people pay what they can afford.

Fri, Jun 14 12:06pm · scar tissue after knee replacement in Joint Replacements

Hi Cheris. I had my TKR 5 mths ago. Same results as you had…swelling, tight banding, stiffness and extreme locked spams of IT band, hip and SI joint in my butt. I've gone to PT for 5 mths now and I do the exercises on my own as well. I have had numerous "extreme" surgeries with instrumentation on my spine and rt. pelvis which went through total reconstruction at Mayo in 2003. I have never developed scar tissue and always diligently done my PT, and insisted on more to full range of motion was achieved. My knee surgery has also left me with a inbalanced state and I've fallen a number of times. I have a "popping' sound and feeling between my knee and my hip and it's constant when I take a walk. Knee and lower leg still very swollen and I ice 2-3 X day. Years ago, I locked my shoulder with a fall, and was scheduled to have the scar tissue broken by a surgeon. I was moving a very large painting and frame begain to twist and I couldn't just let it go so I held on. As my arm raised up and slightly back, I heard and felt a loud pop. That was it and I then had free range of movement in my shoulder again. I would do the same to break the scar tissue in my knee if I knew it would solve my full range of motion issue and was safe, but not certain how to accomplish. My surgeon is an older surgeon and he offers no advice on how to manage with the scar tissue and hasn't mentioned lazar treatments. Has anyone else experienced this and if so how did you rectify the situation and regain your full movement? Thank you for your suggestions….my life is on hold and I live alone and must manage caring for my home, dogs, property as well as my health. I'm very discouraged at this point and it only seems to be getting worse with the falls. I appreciate any advice. Thanks so much.