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Feb 7, 2019 · Caring for someone with dementia / Alzheimer's in Caregivers: Dementia

I am a "Yooper Girl" as I was raised in the Upper Peninsula of Michigan (eastern side – the Les Cheneaux Islands – south of Sault Ste. Marie). I remember shoveling so much snow!!!! : ) When our eldest was two Tom and I moved north with him and lived there in the home I grew up in. We lived there for the next nine years and we welcomed our second through fifth babies there. Then, Tom took a job with the federal government and we were bound for Northern Virginia. Tom is a native of Richmond so we thought we were coming home, but NOVA is not really like the rest of Virginia! We have been here ever since. Our eldest and his young family moved north this past fall (missing the babies!) and are in the Gaylord/Grayling area.

Feb 7, 2019 · Caring for someone with dementia / Alzheimer's in Caregivers: Dementia

Thanks for your response, Virginia, I do appreciate it. Tom is ten years older than me. I want to say that I feel guilty to be involved here on the site, honestly . . . let me explain. I wonder if I am "borrowing trouble" (a saying a friend shared with me one day – her husband battles with cancer). It wasn't in relation to our present situation. We don't have a diagnosis beyond MCI, but the changes I have observed in him over the past number of years have me believing it won't just end here with MCI. I feel confused about my feelings!

Feb 6, 2019 · Caring for someone with dementia / Alzheimer's in Caregivers: Dementia

I look forward to reading your article, Scott – thank you for the link! : ) I am afraid I do care too much about what others think, especially the kiddos (big and little alike). Your example of patient endurance and perseverance are admirable and a very good example. Oh, that ugly perfectionism, it rears its ugly head within me way too often! I can see from your writing alone how much benefit this particular caregiving will benefit the growth of my own soul. I was just videochatting with my daughter-in-law and the babies! It was good to be able to talk things over with her – she does listen and has some medical background as well. I must scoot as I need to pick up one of the teens.

Feb 6, 2019 · Caring for someone with dementia / Alzheimer's in Caregivers: Dementia

Scott, I am so grateful for the time you take in your thoughtful responses to me. You have endured/are enduring much. Your words and your walk are a beautiful testament to waiting/watching and taking things one day at a time. It is difficult for me to let go and trust, though I know it is all I can do. I am a planner and organizer – I want to know if this will turn into what I am concerned it may be so that I can "plan" and take action. I suppose, too, part of that is being concerned our older children will think me overexaggrating and off my rocker! I don't want to cause Tom undue stress either. There is much unsettled in my mind and I don't even have my thoughts all in order or clear for that matter.

Feb 5, 2019 · Caring for someone with dementia / Alzheimer's in Caregivers: Dementia

Thank you, Scott, I appreciate it – that's a very good idea. : ) I had one of our teens at the family doctor the other day and mentioned Tom's diagnosis. I told him what I saw with regard to MCI not always progressing to dementia (only 50% or so). He didn't look as hopeful and said it is more like 60%. So, we just wait and see? Is that what all of you guys had to do as well? Tom doesn't have any family history of dementia (that we know of), but the neurologist said it could start with him.

Feb 5, 2019 · Caring for someone with dementia / Alzheimer's in Caregivers: Dementia

Thank you, Virginia, for sharing your story with me. I am touched at your tenderness and your willingness to share with me and also filled with compassion for you and your dear husband and your daily walk. It seems surreal to think that we could be there someday . . . especially given that Daddy is the sole breadwinner and we still have six children under the roof. Our youngest just turned seven.

Feb 5, 2019 · Caring for someone with dementia / Alzheimer's in Caregivers: Dementia

Thanks, Virginia . . . it is just that my family has been in denial for so long and I have been the only one pushing, hoping for a diagnosis of some sort to understand what we are dealing with. Also, then with learning the initial diagnosis of MCI, hoping that it could remain that way after what I read. But, all is in God's hands. I hope and pray for a miracle, which, of course, He will do, if it is what is best for us – I trust this and in Him.

I am trying to educate myself, here and there, amid our busy family life, with trusted websites like Mayo. I do want to be best prepared for what may lie ahead. I am grateful for the information you guys have shared. I just have to figure how I will bring it up with Tom.

Feb 5, 2019 · Caring for someone with dementia / Alzheimer's in Caregivers: Dementia

Thanks so much, Scott! : ) I will definitely speak with Tom about it and I am really glad you shared the information and your family experiences with me.