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Posts (10)

Jun 27, 2019 · Can’t get lymphedema if you only had sentinel node removed?????? in Breast Cancer

I originally had one sentenal node removal with a sentanal node recurrence. I had 23 nodes removed after that. I did not see anything going on. One of the nurses in chemotherapy told me that I needed to address the issue. Referral to Lymphadema clinic. It only takes one lymph node removal to cause Lymphadema. My therapist tells me that it is way under treated.

Jun 20, 2019 · 1st Time at Mayo for Chemo-related Neuropathy in Cancer: Managing Symptoms

Referral to lymphadema clinic. I see an OT (occupational therapist) who has special training in lymphadema care.

May 6, 2019 · Gynecological neuroendocrine cancer in Neuroendocrine Tumors (NETs)

I get the Neupogen shots at a clinic in the Cancer center. Treatment and doctor's appointments are all close together.

May 5, 2019 · Gynecological neuroendocrine cancer in Neuroendocrine Tumors (NETs)

I found out that I was very anemic and I think that was part of the problem causing me to be so sad. I had to skip one dose of Taxol but did have it this week. I am scheduled for a Neupogen shot to try to decrease the chance of anemia. Chemo makes me feel nauseated and generally bad but I do feel better than I was.

Thank you for your response.

May 3, 2019 · Gynecological neuroendocrine cancer in Neuroendocrine Tumors (NETs)

Thank you for the information. Unfortunately the closest NET specialist is not close by. My financial situation does not allow a cash visit and boarding, transportation to, etc.

Apr 25, 2019 · Gynecological neuroendocrine cancer in Neuroendocrine Tumors (NETs)

I have since had a recurrence of my breast cancer in the sentinel lymph node. My surgeon thought the chemo was so effective that she couldn't find it. They told me it is now a stage 3. I had surgery to remove the lymph nodes in my left arm. Then, more chemo followed by radiation.
I thought I was doing pretty good until I ended up in the hospital twice while on AC chemo. Now I find myself sad and even tearful at times. The doctor took me off the AC chemo for 3 weeks and now I am on Taxol weekly for 10 weeks. Is it unusual to feel sad about the whole thing?

Feb 8, 2019 · Gynecological neuroendocrine cancer in Neuroendocrine Tumors (NETs)

I am curious if anyone else has had a gynecological neuroendocrine tumor. I had 2 separate neuroendocrine cancers. One was stage 3 ovarian with involvement in the omentum.
The other was a stage 2 breast cancer.
The information on this is almost impossible to find
Maybe someone else has had experience.

Feb 8, 2019 · Facing Cancer Recurrence, PTSD & Acknowledging Mental Health in Cancer: Managing Symptoms

I am sure there are groups around but I don't know how to find them.
I will need to be more proactive. Thank you for responding.