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6 days ago · Bladder cancer: Is a stoma the same as an ostomy? in Ostomy

.harp player, it is hard to say if you can handle things immediately after going home after the surgery. If you can be there while she is in the hospital you will be shown how to care for the stoma. This is not easy surgery to get over. There are emotional adjustments as well as the physical ones. Her RN daughter probably has dealt with this in children and would be the better candidate for at least the first week or two. A visiting nurse would be advised if the daughter cannot do it. Of course, someone else would need to be there as well since the visiting nurse is there for a short visit and it may not be every day. There are various websites that explain what will take place if you do a search. This a time that you can not have too much knowledge.

6 days ago · Bladder cancer: Is a stoma the same as an ostomy? in Ostomy

Unless there are other complications it will just be urine. However,the stoma will be made from a piece if the small intestine so it will always contribute bacteria to the urine. Hygiene is most important..

6 days ago · Bladder cancer: Is a stoma the same as an ostomy? in Ostomy

@bcstew. Might I ask where you had your surgery. Was it a private clinic or one of the larger hospitals? Do you know what caused your prolapse?

6 days ago · Bladder cancer: Is a stoma the same as an ostomy? in Ostomy

@bcstew, bear in mind my husband has a urostomy — not a colostomy. I’m sure most things are different for you. It is hard when reading the product descriptions which ostomy it is intended for. That is something the industry needs to correct.

6 days ago · Bladder cancer: Is a stoma the same as an ostomy? in Ostomy

Thanks for the recommendation. We are already using the wipes and are considering the spray for more complete coverage. A nurse friend said they have used milk of magnesia to neutralize the urine. You let that dry (hair dryer speeds the process) then dab or spray on the barrier. Has anyone tried that?

Sun, May 17 4:14pm · Urostomy: How do you care for skin under the wafer? in Ostomy

I am calling the part attached to the pouch as the wafer. This is a one piece pouch. Maybe it is a flange on a two piece. ??? We are Mayo Clinic patients so yes, there is an ostomy nurse. We are located over an hour from the clinic so we go for an appointment only when required. Thank you for your concern. Everyone has been helpful and appreciated.

Sun, May 17 7:23am · Bladder cancer: Is a stoma the same as an ostomy? in Ostomy

Your response has prompted me to ask if anyone knows whether a barrier ring is necessary for skin health. We have had so many problems with leakage. My husband’s stoma is irregular in shape and slightly recessed. What has finally worked is a convex wafer and no barrier ring. We have begun to use the “Y” shaped barrier strips around the outside edges as well as the elastic belt and the pouch is good for three or four days. Now my concern is the irritated skin. I’m sure that if he gets even one lesion it will be difficult to heal.

Sat, May 16 3:04pm · Bladder cancer: Is a stoma the same as an ostomy? in Ostomy

My husband recently had his bladder removed due to cancer and has a stoma. Yes that is the same thing as an ostomy. She will have a urostomy vs. a colostomy (colon) and iliostomy (small intestine). She will have a new way of life but hopefully she will be cancer free. The stoma will be made from live tissue and will have to be cared for. She will have a collection bag located somewhere on her lower abdomen. Exactly where will depend on her individual anatomy. Old scar tissue, skin folds, weight, all have to be considered. You might tell her if it can be located below her belt line it will be easier to bend over to pick up something off the floor. Little things like that which we take for granted become a challenge with an ostomy. My husband plays golf and teeing up the ball has become a real challenge. There are other challenges like urine leakage at the most inopportune times and skin issues around the stoma but they can be dealt with and she can live a full life. Encourage her to give herself time. The first six months will be a learning period and a time of regaining her strength and developing stamina. Tell her not to hesitate to ask for help from her doctor and her stoma nurse as well as the manufacturer’s rep and the supplier of her supplies. She can have a nurse come to her home for a few weekly visits to help her learn what to do. It is not always possible to find an experienced nurse in your local area. If the first one does not seem to know enough do not hesitate to ask for a different one.

You did not say if she is on Medicare. Medicare covers the cost of the visiting nurse and all of her regular supplies. Free samples of the supplies are available from at least three manufacturers and they can be requested on line. We have settled on Coloplast but try them all to see what works for her.

I hope I have not given you too much info. She is lucky to have such a caring friend. Best of luck, Kay