@francine6829 Hi Francine, How long have you been on Tomoxifen and what dosage. Thanks
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@batm I hear ya! The doctor told me that after a month it is all out of your system. Well I'm here to tell you it took almost 3 months to feel like myself again. Glad to hear your doing well on Tamoxifen how long have you been on it.
@francine6829 I don't know if it will give me the coverage that I need. I do know that if the side effects are so severe and I stop taking it I have no coverage. I read a study that was done in Italy and it was about how the dosages have never really been adjusted and could women use less and be protected because they stayed on it. They had the women take 5mg per day for 3 years. That spoke to me. When I was on Anastrozole I asked my doctor why is it only one dosage. She had no good answer. Tamoxifen comes in 10mg & 20mg I was given 20mg. Had I known at the time there were different dosages I would have asked. For now I will continue the smaller dose I do intend to increase it to 10mg daily but for now I'm tolerating the 5mg. I just started taking it in June so far so good. We need to do what we feel is best for us. When I was on Anastrozole the pain was intolerable and had decided to stop it on my own I was done. My doctor offered Tamoxifen so I am giving it a try my way hopefully I know what I'm doing. If I have no quality of life I have no life!
@lisman1408 Same thing I'm going through right now. I'm 65 was on Anastrozole for 6 months felt like I was 90 years old. Took a break on my own for 3 months Doctor gave me Tomixifen and I have cut the dosage. She prescribed 20mg and I cut it in half and take every other day. At this point after the horrible effects of Anastrozole I have decided to start slow. I intend to increase it but for now feel as if some medication is better than none. I have not checked with my doctor on any of this because I know my body and the effects of drugs on it. As you say pick your battles. Good luck to you!
@lisman1408 I did not take any medication for 3 and a half months. Could not deal with the pain and mentally I could not stop thinking about the long term effects on my body from these drugs. Something tells me if it effects your muscles what is it doing to my heart which is a muscle. I may be overthinking all of this but that's me. My doctor prescribed the 20mg and at that time I was not aware that it was available in 10mg. After doing some research on my own I happened on small study that took 5mg each day. It said that the negative side effects were much less. I am changing the medication myself I am cutting the 20mg in half and taking every other day I just started last Sunday. I just moved to another state and need to find a new oncologist. In the mean time I will see how I tolerate Tomoxifin and hope that a smaller dosage offers some protection rather than no medication. Quality of life matters and I'm not sure that some doctors realize the physical pain we are in.