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Jan 15, 2019 · Letter to donor family: I'm not sure how to start in Transplants

im not sure how to start it .. what do you guys think so far
is this too much information ..im not sure how to thank them i just know its something i really want to do ..

My husband was the 26 year old male who received the precious gift from your loved one ..i know there are no words that can express mine and my husbands feelings for your family ;it takes a very special kind of person to make such a sacrifice in their time of grief and need.. I continue to keep you and your loved one in my prayers I wanted to tell you a short summery of who my husband was …My husband had diabetes since since he was 9 ..he was on insulin injecting 3+ times a day ..when I met him his diabetes was very uncontrolled and after a couple years it messed up his kidneys and on November 2016 we were given the horrific news that he was going to need dialysis to basically keep him alive ..as you can imagine its not something a young person who is just starting his life wants to hear ..we were both heart broken we knew it was going to be tuff specially with the survival rates … he wanted to live so bad ..he wanted another chance he wanted to be healthy but at the same time he was tired of hospitals ,injections, treatments and now dialysis… I did my best to encourage him to keep going forward and to never compare our lives with other peoples .. it was going to be tuff but i always told him GOD IS BIG and he loves us he will cure him and he will live a happy life ..my husband never missed a treatment and we signed up at two different hospitals to get the gift of life with a donor .. I did try to give him one of my kidneys but because of my low weight I wasn’t able to also because doctors recommended he get a pancreas and kidney to cure his diabetes as well as his kidney disease ,he honestly struggled a lot during that waiting time there was a lot of times he would end up in the icu due to his illness a lot of hospital stays ..he went from having a caterer on his chest that was connected to his heart to a new better form of dialysis that didn’t drain him as much ..he started doing peritoneal dialysis it’s a form of dialysis done at home instead of 3 times a week at a hospital …he had a catheter on his lower stomach and he would connect to a machine that would do the job that hs kidneys couldn’t do anymore .. it was a 10 hour treatment we would do it over night but it was still hard on his body he was on many medications for blood pressure as well … we had to go to the hospital a couple times during each month and he would get monthly labs to make sure his dialysis was working okay .. let me tell you it was so hard he was always sad and scared of passing .. he wanted to live more than anything …we were so in love he wanted a normal life ..grow old have a family with me and just be hospital free .. we found out the waiting list at Loma Linda for kidney-pancreas organ donation is 10 years ! …he didn’t believe he would live that long … but months after that on November 2017 his doctors recommended him at mayo clinic in Arizona ..we were told the waiting list there is shorter so we signed him up … on February 14 2018 valentines day we finally got married …something we wanted to experience together …me 23 years old and him 25 .. on march 2017 we found out I was pregnant .. we were both very excited and now had more reasons to keep going and on may 2017 mayo called and told us they had a donor .. we rushed to mayo and he got your gift of life and let me tell you your loved one really changed his life .. the organs were a perfect match and worked right away .. he was no longer a diabetic he was able to drink a soda and not worry about insulin injections or feeling sick afterwards .. the kidney worked right away as well and he didn’t need dialysis any longer ! your beloved ones gift of life changed my husbands life completely .. you have no idea how much .. my husband was living a “normal” life now and all his doctors always congratulated him and thanked him for always taking care of that precious gift ..my husband never missed an appointment and always did what the doctors wanted him to do to keep them healthy .. please know that he took great care of them and was thankful everyday … we would thank god for the new life my husband was privileged to have and pray for your loved one and your family as well … Edwin is my husbands name .. he wanted to write this letter himself but on November 2018 he had an accident ..not related to your loved ones donation .. it was a fall ..he passed away as well.. I was 8 months pregnant at that time .. I share your pain .. but your loved one had a purpose just like my husband and your loved one is so amazing he gave my husband 6 months of a normal life thanks to your gift … he was happy he was always smiling …he got to eat all kind of things he was neer aloud to have and let me tell you he was so thankful in every bite ..he got the chance to go back to work and he developed a new interest in deers .. he enjoyed eating meat a lot and he was even more loving and thankful for life .. although he didn’t get the opportunity to meet you guys to thank you .. he left a beautiful baby girl and me behind to do so for him ..i know it was in his to do list he just wanted to to wait for the right time to do so ..you know our baby looks just like him and I just want you guys to know who he was ..that your loved ones gift went to another angel like your loved one he was a donor as well and now 4 more people were given a new chance at life with his organ donations … nothing I say will ease your pain and I can never thank you enough for the big impact your loved one made and continues to do so in our lives .. my husband was a fighter a real warrior and an angel just like your loved one .. if you’re interested i would want to know at least a little of the person who gave my husband and myself that enormous gift of life ..whatever your decision is I respect it I will keep you in my heart forever and in my daughters as well. Thank you