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Fri, Apr 5 4:34pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Yes. I live very close to East Greenwich. ..a 15 minute drive. My general practitioner is in East Greenwich. Is your doctor a specialist in MAC?

Thu, Apr 4 5:34pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Merpreb. I also live in Southern New England. I’ve had bronchiectisis and Mac for about 5 years.

Sun, Mar 17 9:40pm · health at diagnosis in MAC & Bronchiectasis

Hi Ann, I too have everything you mentioned as well as atrial fibrillation and sleep apnea. I sleep on a wedge for the acid reflux and cannot get used to a cpap. My pulmonary doc has prescribed a vest that is used mostly by cystic fibrosis patients. Tho I have yet to be fitted for it, I understand that it acts like the aerobika on a larger scale and helps to clear the mucus. I have a lot of mucus and have trouble clearing it. I am not able to take the usual antibiotic cocktail that many are prescribed due to interaction with my many heart meds. And I am not able to have an ablation to control my afib due to the amount of mucus and the length of time I would need to be intubated. It all seems like a catch 22 to me. All I can do at this point is try to follow the anti acid diet, sleep on the wedge, drink lots of water, not eat after 4 in the afternoon and use the aerobika and shakey vest. I have reduced my work hours to part time and I am still exhausted. It has helped me to hear what others who have this diagnosis are doing to cope and what their docs are telling them about it.

Sun, Mar 10 8:54pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Thank you. I have excessive post nasal drip and both Mac and bronchiectasis. I have had serious pneumonia in the past for which I was hospitalized for over a week. I constantly cough and choke on mucus but my pulmonary doc has not said anything about pseudomonas infection. I also have sneezing fits. That is why I was wondering about it.

Sun, Mar 10 8:18pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I’m not sure how to address a question to a specific person here and I sometimes feel like I’m butting in with an unrelated question. But I am wondering if anyone can explain pseudomonas and how it is related to Mac and bronchiectasis.

Sun, Mar 10 8:13pm · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Can anyone tell me what pseudomonas is? It has been mentioned several times and I wonder how it is related to Mac and bronchiectas.

Wed, Feb 27 8:58am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

Your suggestions have spurred me to consider becoming more disciplined in my approach to my multi faceted problems. It seems one is responsible for the other like a cascade of physical effects that influence the others. Sometimes it’s difficult to find the point of origin and begin there to improve the big picture. Thank you for pointing out the place to begin the improvements and encouraging me to action on my own behalf. I am grateful for finding this forum to share our experiences regarding our methods and products that improve the quality of our day to day coping with all the health issues that we share.

Wed, Feb 27 5:50am · (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS in MAC & Bronchiectasis

I have been taking omeprazole for several years, sleep on a wedge and eat my last meal of the day at 4. Beyond that I should say that I probably do not follow the diet very well. I do have a couple of cookbooks for acid