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1 day ago · Medical Cannabis for MAC in MAC & Bronchiectasis

Ginak. It is my understanding that the current issues with vaping thc have to do with the oils that are created as part of the inhalation/deliveryprocess. Lungs, especially those with compromising conditions such as Mac or ntm’s, should not be exposed to substances that would inhibit oxygen exchange. I would check with your pulmonologist and follow recommendations . I don’t believe much if any research has been done regarding cannabis or thc vaping and more and more reports of lung damage are surfacing each day. I would definately proceed with caution and check with my pulmonologist. This is just my opinion.

2 days ago · Medical Cannabis for MAC in MAC & Bronchiectasis

Suenfl. I would like to hear as well.

4 days ago · Starting Arikayce - nervous in MAC & Bronchiectasis

Rits and sandykayhud. I have been 11 days on Arikayce and so far so good. My voice got a little squeaky one day but that’s it so far. I think it’ll be okay!! I use it in the morning, gargle with hot salt water right after and then eat breakfast. I think that helps to clear the throat. I will continue to post as I progress.

Mon, Oct 7 8:25am · Starting Arikayce - nervous in MAC & Bronchiectasis

Rits. Nurse told me 3rd to 10th day are the critical times for reactions. The 2nd day I needed to go to the dentist first thing in the morning, since I broke one of my molars eating nuts in my cereal!!
My coughing lessened up in August after 20 days on keflex and has not returned to the previous degree. I only work part time 3 to 4 days a week and go in at 10 am.

Mon, Oct 7 12:10am · Water at freshwater lake in MAC & Bronchiectasis

Gaylewroc. I started Arikayce last Wednesday. My voice is now starting to sound like I have laryngitis. The actual usage takes a day or two get used to, but the nurse was great. Her name was Denise. If you have the same nurse tell her Candy said “hi”. Keep us posted as to how you do with the medication. I’ll be posting my progress as well. Best to you.

Sun, Oct 6 4:16pm · Starting Arikayce - nervous in MAC & Bronchiectasis

Rits. Hi there. Glad to hear from you and that’s wonderful news that you have no more Mac growth. I am 5 days in using the Arikayce and so far so good. I am hardly coughing at all and not coughing up anything to speak of. I am told to use the Arikayce every day. It is difficult to work and do all that prep and get ready and cook breakfast and lunch before I go to work. I am having a bit of trouble sleeping and have a slightly elevated heart rate. I am wondering if it’s from the medication. It doesn’t mention those side effects at all as being something to look out for. I see my doc on October 21st. And then again in December when we will do a sputum test. I had a baseline hearing and liver function test before I began the Arikayce and will have follow ups every month that I am on it. Let me know how you are progressing. Sending many blessings your way. Best, Candy

Wed, Oct 2 6:10pm · Water at freshwater lake in MAC & Bronchiectasis

Rits. I had my first dose of Arikayce today. Nurse came and all went well. It seems I will be taking it every day unless I have a reaction. Were you able to go back on the Arikayce again after your breathing problems? I am hoping all goes well, but time will tell. I’ll keep you posted. I will take in the morning and then go to work right after.

Mon, Sep 23 3:37pm · Pneumococcal Vaccinations against pneumonia in MAC & Bronchiectasis

Alleycatkate. I don’t get the pneumonia shot every year. Just the flu shot. The pneumonia shot I got this year was due as I hadn’t had one in awhile. Doc keeps track.