I just started Exemestane like 6 weeks ago. What were the side effects you had – if you don't mind me asking. I was on Anastrozole previously like for 11 months. My hands hurt so much it was unbearable.
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I met a lady who has severe Lymphodema on her left arm – she said she is always vigilant as any slight injury, causes her severe cellulitis. She is also a BC survivor – but they took out 29 of her 30 lymph nodes on that arm, like 15 years ago. So she still has problems. All of her nodes were negative – but maybe that's what they did back then. Seems like the surgeon was crazy to me. Good luck & she was wearing a compression sleeve.
I wish you all the best of luck making this decision. After 3 weeks on Exemestane, my hands feel better. (so It's been 4 weeks since I took Anastrozole). They also told me 5 to 10 years on the drugs. But I'm only 64 now & just passed my 1 year mark. I hope the doctor has a frank talk with you about your side effects and your chances of recurrence. You have to trust them, even though it's scary.
Did you get a baseline bone scan – before you started? I had one and they told me to take 2,000 units D3 Oil capsules a day. And 1000 of calcium daily. These things will not hurt to take. Discuss this with your oncologist or her nurse. (It's easier to talk to my oncologist's nurse). Good luck.
I for sure will talk to her about this. I already told her about advances in treatments. I hope she's smart enough to listen to her doctors about options. She lives in Kansas City – so there should be good treatments there. This Blog has done so much for my spirits. You guys all ROCK!!! I've learned so much from this group.