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3 days ago · Concerned about the side effects of anastrozole in Breast Cancer

Wow – what a jerk! I'd get a new oncologist too. I'm sticking with the anastrozole for now – not sure if I can last the full 5 years. I had 21 radiation treatments. Well hang in there – you are not alone. I'm obese – but am working on that. Joined the YMCA. Small steps.

3 days ago · Concerned about the side effects of anastrozole in Breast Cancer

Mine was all the same except I had 5 lymph nodes taken. NO hysterectomy. My onco type score was 22. No chemo , just radiation. You should ask why the checkups will go past 3 yrs? BTW I did not get a repeat MRI. Just Mammogram at 1 year. I go to University of Nebraska Medical Center.

3 days ago · Concerned about the side effects of anastrozole in Breast Cancer

What stage was your tumor – if you don't mind me asking. I'm getting 6 month check ups – but only for 3 years. I was stage 1 IDC.

4 days ago · Concerned about the side effects of anastrozole in Breast Cancer

Yes – my oncologist said anastrozole aggravates arthritis – makes it worse. So check this possibility out.

5 days ago · Concerned about the side effects of anastrozole in Breast Cancer

It can cause joint and muscle aches/pain. I assume anywhere – my hands, toes & shoulders hurt. I'd check with your doctor, because it may be unrelated.

Thu, Oct 3 3:18pm · Aromatase Inhihibitors: Did you decide to go on them or not? in Breast Cancer

Let me know what the doctor says. Keep in mind if it does come back – it will probably come back in the brain, bones, lung or as liver cancer, That's what I keep in mind.

On another note – I went to a cancer talk on 9/12. It was really interesting – they had a panel of 6 doctors, to talk about re-occurrence.

The most interesting fact was that even people with a bi-lateral mastectomy, have the same rate of re-occurrence, as those that had other treatments. Because some breast tissue is left behind even < 2%, so this does not change the re-occurrence factor. They said they are trying to talk most women out of this for that reason. I learned a lot of stuff there.

Thu, Oct 3 1:22pm · Aromatase Inhihibitors: Did you decide to go on them or not? in Breast Cancer

I agree it's really a tough decision. I also have Stage 1 IDC with the same treatment: surgery & radiation only. . When I asked my oncologist point blank about the re-occurrence rate. She seemed evasive but said this drug lowers re-occurrence by 50% (of whatever percentage I have). She was evasive on the % I have of re-occurrence. Anastrozole (I've only been on it for 10 months) is aggravating my arthritis – not fun. She also said because my tumor was ER+ my re-occurrence rate will NEVER be 0. That bothered me for some weeks, but now I have accepted that fact. I refuse to live in fear – but still wonder if the drugs help that much. I found this calculator to be of great interest. Someone posted this a while back. https://www.breastcancer.org/research-news/online-tool-predicts-hr-pos-recurrence-risk https://www.cts5-calculator.com/

Fri, Sep 27 2:09pm · Aromasin (exemestane) in Breast Cancer

i looked into that drug it is a LOT more expensive than the other drugs. SORRY!! My Doctor was thinking of switching me – because of hand pain, but changed her mind. I also have essential Tremor, and steroids make it so much worse so that was not an option. Going to see a Rheumatologist now. Anastrozole makes arthritis WORSE – in case no one told you guys that.