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2 days ago · Completed 5 years of anastrozole. Withdrawal symptoms? Side effects? in Breast Cancer

My oncologist said it take 60 to 90 days to get out of your system. Good luck & hang in there.

2 days ago · Completed 5 years of anastrozole. Withdrawal symptoms? Side effects? in Breast Cancer

I take it at night before bedtime. But about 12 months into anastrozole – my hand pain was about a 7 every day, I could not stand the pain anymore. My oncologist switched me to Exemestane, which has my hand pain at about a 1 everyday. Been on that now since Nov. 2019. I'd say it took about 3 to 4 months for the hand pain to disappear. I think she told me it takes about 60 to 90 days for the anastrozole to get out of your system. I'm hoping to make it the full 5 years now on an AI.

Mon, Jun 22 10:21pm · Aromatase Inhihibitors: Did you decide to go on them or not? in Breast Cancer

I was HER2 neg and HR+ with IDC. I had lumpectomy with radiation, No chemo. Good luck.

Mon, Jun 22 7:54pm · Aromatase Inhihibitors: Did you decide to go on them or not? in Breast Cancer

Yes – it most likely will not return in the breast. I heard of a woman who said that & refused radiation. It came back in her brain & she died,

Mon, Jun 22 7:52pm · Aromatase Inhihibitors: Did you decide to go on them or not? in Breast Cancer

Talk to your oncologist. If it comes back it most likely will come back in the Brain, bones, lung or liver. So a Mastectomy will not help. After I had all these facts – i decided to take an AI. But it is a personal choice. I read like 20% or so of women stop taking it in the first 2 years of treatment from side effects. Because of my age at the time of diagnosis – 62 – I decided taking an AI was my choice. I want to live another 20 years.

Sun, Jun 21 4:48pm · Aromatase Inhihibitors: Did you decide to go on them or not? in Breast Cancer

In November 2019 I switched from anastrozole to exemestane. My hand joint pain is still there but maybe a 1 as compared to a 7 on anastrozole. Hopefully I can stay on exemestane for the full 3 years remaining. Stay safe & healthy everyone in these challenging times.

Tue, May 19 10:02am · Aromatase Inhihibitors: Did you decide to go on them or not? in Breast Cancer

Yes they do watch you carefully, but did they tell you – if it returns it may NOT come back as breast cancer. Most likely places it returns is Brain, Bones, Lungs, Liver. I heard about a lady who had that same plan (a double mastectomy if it returned), but it came back as brain cancer (breast cancer in the brain) and she died. I had stage 1 IDC and had a lumpectomy with 21 radiation treatments, with no chemo. Yes we must all make our choices as to quality of life but make sure you are completely informed. So that is why I'm taking Exemestane and hope to go at the least the full 5 years. But my bones were good, so that is a factor. I did not have thyroid cancer, but I do take thyroid meds – that is a pain getting them at the correct dosage. Good luck with radiation.

Sun, May 17 10:22am · Aromatase Inhihibitors: Did you decide to go on them or not? in Breast Cancer

I read that 20% of women stop taking an AI inhibitor in the first 2 years. I don't know if they studied the re occurrence rate among those people. I agree that doctors need to support whatever decision we make. I switched to Exemestane from anastrozole, I find the side effect much more tolerable now – I'm hoping to go the full 5 years. Some patients they are keeping them on it for 10 years. I'd like to see the difference in re-occurrence rates in 5 vs. 10 years treatment. I just know the survival rate of metastasized BC is like only 25%.