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Posts (13)

Thu, Feb 20 6:53pm · Esophagectomy surgery in Head & Neck Cancer

Where are you being treated? Have you had chemo and/or radiation? What stage are u? Where will you have the surgery? From all of the information I've been given and have read, the best chance of survival and hopefully a cure, is the 3 tier chemo/radiation and surgery.

Tue, Jan 14 10:14am · LIVESTRONG Program, returning to physical activity after treatment in Cancer: Managing Symptoms

I went through the LIveStrong program from Sept-Dec, 2019 @ the Y in Bismarck, ND. Awesome program that exposed us(6 participants and their caregivers) to balance, cardio, weight training, yoga, and a form of line dancing. For me, I loved getting acquainted with the different weight and cardio machines, and I do love yoga(the best thing I’ve ever done for my body.) I’m stronger, have more endurance, and enjoy the friendship and sharing with other cancer survivors. It’s also a great program to lessen anxiety and depression. Go for it!

Oct 4, 2019 · Life after a cancer diagnosis in Cancer

Beautiful-thx for posting.

Oct 2, 2019 · Life after a cancer diagnosis in Cancer

Good for you Laurie. So happy to hear you have the live strong program to attend. I hope the program becomes available all over our country. I love it and so good to be with other cancer survivors and seeing their determination to help themselves become stronger.

Oct 1, 2019 · Life after a cancer diagnosis in Cancer

I was diagnosed with esophageal cancer last Dec and had surgery April 10th of this year. My first 3 month checkup showed NED however there are a couple of spots on my liver that have darkened since the last CT so per the radiologist suggested an MRI as the spots are too small to biopsy.
Yes, I too have scan anxiety, not quite as bad as when I went thru the initial staging process but still always in the back of my mind.
I’m grateful I’ve had the summer to work on building up my body with walking my dogs, doing yoga, golf, mowing my yard. @ this stage there is nothing I can’t do that I did before my diagnosis. Now I am going thru a program called Live Strong @ my YMCA which is for cancer survivors and their caregivers. We do strength training, cardio, yoga and some mat exercises for balance. This is a 12 week program twice a week for about an hour each session. We have 8 cancer survivors and three caregivers in our class.
My point in telling you this is because the more I engage in the daily activities that I enjoyed in the past and staying engaged with people that matter and care about me, the better I feel. I do think about my upcoming MRI and my 2nd 3 month checkup, but I refuse to let it control my life. I will do what I can to keep this cancer from coming back by my diet, physical activity and God’s mercy.
Peace and courage as you continue your journey.

Jul 1, 2019 · Synovial sarcoma: Proton or conventional radiation after surgery? in Cancer

You’ve been thru a lot and I certainly understand your hesitation about proton radiation. I’m hoping you’ll receive many more posts from people that have received proton radiation as well as from your research on the internet from hospitals and clinics that administer proton radiation. Hang in there!

Jun 30, 2019 · Synovial sarcoma: Proton or conventional radiation after surgery? in Cancer

I had 25 proton radiation treatments for 5 weeks @ Mayo in Rochester plus one weekly chemo for 5 weeks. I suffered no ill effects other than fatigue that gradullay came on after about 2-3 weeks. I drank a lot of fluids, walked to my appointments, went to a gym a few times and basically tried to move every day. I also ate a balance of healthy foods and did indulge in ice cream, mac and cheese and other higher caloric foods to maintain my weight, which was a concern because of chemo mainly. Proton radiation was recommended for my type of cancer(EC) because of how it pinpoints the cancer with a more precise beam and does little to no damage to other adjacent organs. Bottom line-it shrunk my tumor by 2/3 and Im confident the chemo killed the cancer. No fear and best wishes with your journey.

Jun 28, 2019 · Esophagectomy surgery in Head & Neck Cancer

Hello survivor suz
I was diagnosed with EC(adenocarcinoma) in Dec. I had 5 rounds of weekly chemo and 25 rounds of daily chemo in 5 weeks. April 10th I had an esophagectomy, the minimally invasive Ivor Lewis @ Mayo in Rochester. I had a feeding tube inserted during surgery and started on the feeding regimen on day 7 in the hospital and continued for a little over a month @ home while I began eating clear liquids and moving up to solid food on week 3. The feeding tube kept me from losing more weight, basically kept me alive until I could get in more calories. I’m still struggling a bit getting in enough calories and learning what and how to eat, though I basically eat what I want except dairy seems to not agree with me anymore. I walk daily, started mowing my grass, attend yoga classes and have begun practice with my golf clubs. My only advice to you would be to choose a hospital that does many surgeries and deals with many patients diognosed with EC. Best wishes as you gather information that will help you make an informed decision.