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Feb 4, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Yes I will! I have a question, has anyone filed for social security disability eithbis diagnosis in the group

Feb 4, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Update on visit at The Mayo Clinic in Rochester…,, we are finally home after 2 weeks! That trip was hard on me but so worth it! We have a concrete diagnosis of Sclerosing Mesenteritis….. I had an MRE, liver ultrasound, blood work and yet another colonoscopy. The docs were wonderful and everyone was very knowledgeable. My GI doc was excellent in communicating with me wether on phone, in person or on the portal! I will continue 40mg of Prednisone and 50mg of 6mp and will have blood work to check elevated liver enzymes as my liver is not tolerating it well….. Mayo will be working with my hometown GI as I am her first case to help her learn how to treat me ….. I hope this helps anyone who is thinking of going to Mayo!!!!❤️

Jan 25, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I’ve been on it for 3 weeks, the dr says it takes 2-3 month to really notice anything … I feel nauseated right now with it but that’s about it…: my ca 125 did decrease so that’s a plus. We are at The Mayo Clinic right now swing GI and surgeons. Will update when I know more…. ❤️

Jan 10, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

Hello all! I started the drug called 6mp today…. it’s an old chemo pill that is used to treat Crohn’s and colitis ……. but has had success in helping with symptoms of MP/SP! I’m very nauseated today…. anyone else with advice or had experience with this drug and the outcome? 😕

Jan 8, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

In May, I had a 10cm ovarian mass removed…. was cancerous but was contained…. I still had severe belly pain after several weeks….. my biopsies were sent to Harvard and Michigan because they were abnormal! I spent a week in the hospital June, July, and Aug with a second surgery that revealed an abscess on the outside of my colon…… treated w abx but as soon as meds stopped, pain returned…. surgeon started prednisone and referred to Cleveland Clinic for GI. Numerous invasive test all for inside of colon came back normal …. saw 2 more GI docs. No help…. I’ve had 8 ct scans since May …. saw new GI 3 weeks ago and she diagnosed from first biopsy… she said the mass had abnormal mesentery cells in it…. it also showed on all CT’s! No one really knows how to treat this from what I can see… we are being seen at Mayo fir Dr Pardi, who does see and treat this! Looking for relief as the pain is excruciating……..

Jan 7, 2019 · Mesenteric Panniculitis or Sclerosing Mesenteritis in Digestive Health

I was diagnosed 3 weeks ago after being sick for almost 9 months…. we will be traveling from Ohio to Minnesota Jan 20 to see Dr Pardi’s colleague….. hoping for some relief. My ca 125 is 949.1 and my pain is excruciating……..