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Jan 5, 2019 · I'm a parent of an adult child, recently diagnosed with astrocytoma in Brain Tumor

Hi Carol. I'm sorry to hear that your husband (and you) are on this journey as well. Now that my son has finally agreed to a second opinion, I'm curious how to seek the best (most experienced) doctor for this particular type of tumor. I thought Optune was only for glioblastoma? (I don't know much about it at all.). I was attempting to send you my email address but the server wouldn't let me, saying that since I am a newly registered member, I'm not allowed to. Can you send me yours? (I don't yet know how to send private messages.)

Jan 4, 2019 · I'm a parent of an adult child, recently diagnosed with astrocytoma in Brain Tumor

Hi there. Thank you for replying. He has had two surgeries so far and the tumor has been debunked by about 90%. He is in the midst of a 6-week cycle of combined Temador and radiation and is currently in week 4. The doctor has only given him the options of surgery, chemo and radiation. I don't know that there is anything better but I just want him to have all of the information in order to make the most informed decisions that he can. I had a victory at lunch time today with him. He has agreed to seek a second opinion from a doctor at Mayo as soon as this treatment cycle is completed! He said that way if it comes back, they will already be prepared to make recommendations for treatment. This was a major victory because up until now, he was staunchly against a second opinion. I felt very good about the conversation because it wasn't highly dramatic and I didn't put him on a guilt trip. 🙂 It was just a very calm discussion, full of mutual respect.

Jan 4, 2019 · I'm a parent of an adult child, recently diagnosed with astrocytoma in Brain Tumor

Due to privacy concerns, I will keep this as anonymous as possible. I have a child in early thirties who was recently diagnosed with a grade 2 astrocytoma. There is reluctance to seek a second opinion from Mayo (or any other world-renowned facility). I am a nurse and feel that it’s very important. I don’t know that current doctor is not good; I just feel like with something this serious, there needs to be more than one set of eyes and one brain. If I can talk my child into it, what is the cost of a second opinion –based on medical records — at Mayo? I have done some internet research and some of it seems very hopeless. I don’t want to take a chance of alienating my child if a second opinion wouldn’t even do any good. Advice, please? I will fight as hard as I have to (and risk him getting mad at me) as long as I know it’s not futile. Genetics show that the tumor is IDH mutant positive but missing the 1p19q chromosome co-deletion which, as I understand it, worsens the prognosis.