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Dec 4, 2019 · The Roller Coaster Ride of Cancer in Cancer

I am right with you with your feelings. I had stage 4 Neuroendocrine cancer of small bowel in 2013 with metastasis to liver and lymph nodes also found by a smart gastroenterologist. Surgery removed it all and surgeon said 99.9 percent chance of reoccurrence. I now have two spots on my liver which every MRI has a different explanation. Oncologist moved and saw a temporary oncologist who hadnt looked at my records and was nonchalant about whole thing. Just had another MRI with results being stable metastic lesions although both increased in size. Had a liver biopsy last November and results were benign although Dr. Wasn't sure he got the tissue. One thing after another. Just take one day at a time.

Oct 8, 2019 · I am not ok with this at all in Neuroendocrine Tumors (NETs)

Thank you. I see the new oncologist on the 21st. We'll see how knowledgeable he is about NETs. Then I'll build my case from there.

Oct 2, 2019 · I am not ok with this at all in Neuroendocrine Tumors (NETs)

Yes. I have researched doctors in my own state that specialize in NETS. But it's all about insurance and a Dr. that is in my insurance network.

Sep 30, 2019 · I am not ok with this at all in Neuroendocrine Tumors (NETs)

I also was 48 when first diagnosed with NETs. My primary care Dr. totally missed the ball on my case. After years of various health problems including a diagnosis of Hashimotos thyroiditis I was sent for a colonoscopy and upper GI. Both tests came back normal but the smart gastroenterologist sent me for capsule endoscopy which found my tumor. Had surgery and was diagnosed officially with stage 4 NETs. Was in lymph nodes and liver. Six years later I have spot on my liver and doctors keep sending me for MRI liver biopsy etc.. Have an appointment with new oncologist this month. He's filling in until our town finds a new oncologist. No one seems to have an extensive knowledge of nets in my area. We will see what happens.

Jul 4, 2019 · Newly diagnosed with NET in liver in Neuroendocrine Tumors (NETs)

So the liver is where the net started or did it start somewhere else and spread to the liver? What is the size of the tumor? Did they do chromogranin A test and urine test?

Jan 6, 2019 · Embolization in Neuroendocrine Tumors (NETs)

I had surgery five years ago for nets in my small intestine which had spread into lymph nodes and liver. Just had gamma scan in November which lit up in liver. Had MRI and unsuccessful liver biopsy. Have another MRI in week. Dr talked about the liver embolization as a one of forms of treatment. Would also like to learn more about it.