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Fri, Feb 1 8:27am · Treatment for chronic epstein barr in Infectious Diseases

Do you mean on the actual lateral border of the tongue at the back? Can you see them swollen?

Thu, Jan 31 2:48am · Treatment for chronic epstein barr in Infectious Diseases

Thank you for replying. Spoken with my doctor this morning and was told that I need to accept it is what it is and move forward. So basically refused a copy. I feel at a total loss. These last three months I’ve never felt so unwell and the healthcare professionals refuse to take me seriously (I have GAD) but I know something is a miss. Anyone else had similar experiences and advice as to what I should do next? I cannot continue feeling the way I do and the constant pain is debilitating. I’m only 24 years old and feel as though my life has completely stopped.

Wed, Jan 30 8:13am · Treatment for chronic epstein barr in Infectious Diseases

Hi everyone, just a quick update – My blood test results have shown positive for EBV (as expected) so I guess that is the cause of all my ailments after 4 months of utter hell! Unfortunately I do not have a copy of the titre values – am I able to request these?

Thu, Jan 24 6:45am · Treatment for chronic epstein barr in Infectious Diseases

Btw, has anyone experienced a very sore tongue with EBV? The doc said it’s because I’m run down, but I’m sure it’s linked with the illness.

Thu, Jan 24 5:10am · Treatment for chronic epstein barr in Infectious Diseases

@mrmie I think the most frustrating thing is not having an answer for the way I’m feeling. I know my physical symptoms are real and not a figure of my imagination. My gyne was happy to do another ultrasound but believes it won’t be useful as she thinks the pain in coming from my bowels as I’m extremely constipated so that kinda makes sense. Told me to take some natural laxatives and sent me on my way. Forgot to mention the ID doc is also testing my CK levels as I’m having muscle pain intermittently. He reckons it may take upto a year for me to start feeling somewhat ‘better.’ I’ll definitey look into the naturopath side of things, although I’m not sure how accessible they are in the UK. My gran is a big believer in natural medicinal remedies and swears by linseed, comfrey tea amongst many other things! Thank you everyone for your input it’s greatly appreciated.

Wed, Jan 23 10:33am · Treatment for chronic epstein barr in Infectious Diseases

So my appointment with the ID specialist didn’t go too well – the general vibe I picked up was that he thought I was totally bonkers describing all my ailments and blamed anxiety for most of them. He said I was run down bla bla. He’s ordered tests for EBV, CMV, coeliac disease, hepatitis and HIV to reassure me more than anything. Results due in a couple of days so I will post an update then. He said no further action required assuming the results are all fine. What do I do now?! I have lost all faith in the medical system. Someone help!

Sun, Jan 20 12:51pm · Treatment for chronic epstein barr in Infectious Diseases

@lioness I never actually thought about my gallbladder however I have bowel issues so perhaps it would be useful to see a GI doc. It’s so hard to fit it all into my schedule I go from one appointment to the next! Thank you for the suggestion I’ll be sure to follow up with it. @mrmie will check back in with you guys next week after my appointment hopefully with some answers!

Sun, Jan 20 8:44am · Treatment for chronic epstein barr in Infectious Diseases

@mrmie thank you for replying. My ID appointment is this upcoming Wednesday 23rd jan, so I’m assuming my doctor will be reluctant to order any further testing since I am there so soon. Just don’t feel as though I am getting any better. All tests so far haven’t shown up anything concerning which is great as I don’t want to be ill. But there must be a reason for my current ailments. It’s so frustrating 🙁 sorry to whine on! Hope you’re well?