I live in Central Florida and have been looking for a Dr/neuroradiologist as well. I actually posted for a recommendation yesterday on one of the Arachnoiditis fb groups that I am in. I saw a pain doctor in March 2015 who, very matter of factly, scheduled a series of spinal epidural injections for me without any prior testing done. After the first injection I had numbness that lasted longer than it should have but was assured that happens sometimes. Before the second injection I was asked my pain level which was a 6/7. As soon as I woke from anesthesia I said something was very wrong. My pain was a 9/10 and I could tell there was something different. When it didn’t get better after steroids I insisted on an mri which was done at the local imaging center. The results listed “no Arachnoiditis found” which I found odd since I had never heard that word before. I had posted my experience on fb and a friend said I probably did have Arc from the injection and the imaging center was probably owned by the same doctors as the pain center. She suggested I send my disc to Dr Aldrete in North Florida. I sent my disc to him as well as a neurologist, Dr Sauborm, in California. Both doctors responded with detailed reports showing specific images with evidence of the early stages of Adhesive Arachnoiditis. The mri was just weeks after the second injection. I took both reports to my primary doctor who was friends with the local radiologist. He called him while I was there and went over the reports explaining everything the specialists found. The local radiologist refused to change his report. Shortly after I received a certified letter from the pain doctor saying that I was no longer welcome as a patient. That was almost 5 years ago now and my health has been steadily declining as my pain levels have been increasing. I am still fighting for disability because of the local radiologist’s reports of no Arachnoiditis and the fact that I “paid for outside reviews”. I am now fighting at the federal, and final level for disability. I have learned a lot in the past few years about the disorder, especially that I need to have a follow up mri to see how far the disorder has advanced but if I go to another doctor or another radiologist that is not familiar with Arc and does not know how to diagnose it and ends up misreading a new mri, no matter how evident the Arachnoiditis may be, he/she can destroy my chance of getting effective treatment in the future. I continually hear that I don’t qualify for this or can’t receive that because “I do not have a definitive diagnosis that would warrant it”. I use aids in my everyday use (cane, walker and wheelchair) my husband has to help me shower/dress and so many days I can’t get out of bed at all. Finding the right doctor with the knowledge of diagnosing and treating is such an important step. One I have been praying for and working so hard to find for almost 5 years now so if anyone knows of one please share!