About

First Name
claire

State/Province
NY

Health Interests
Chronic pain, Healthy Aging, Healthy Living, Neurology (brain and nervous system), Women's health issues

Posts (18)

Wed, Mar 20 7:44am · Five Things I Wish I’d Known Before My Chronic Illness in Neuropathy

Please let me know co name, website, etc.
I would love some relief!

Wed, Mar 13 10:58am · Fibromyalgia in Chronic Pain

Bravo ❤! So well said.
Your note just came directly for me (from God).🕊🕊🙏🕊🕊
Thank you from my heart and kudos to you and your great attitude 🙏❣🕊

Sun, Feb 24 9:24am · Autonomic Neuropathy in Neuropathy

Good morning Peggy,
I just want you to know I'll be praying for you. 🕊

Thu, Feb 7 3:30pm · Just Diagnosed with Small Fiber Neuropathy in Neuropathy

I did not get help from 1st two neurologists. They never mentioned small fiber neuropathy.
You need some one who does. Maybe try asking your neuro for smallfiber pn specialist. Also try pain- management, they may know a referral for this type of neurologist.
Ask about punch skin biopsy as well.

Thu, Feb 7 2:00pm · Just Diagnosed with Small Fiber Neuropathy in Neuropathy

Believe me, I understand more than I want to, as my hands and feet/legs are on fire most days /nights.
Please try addressing John Bishop or another leader for some help. They are great resources.

Thu, Feb 7 1:25pm · Just Diagnosed with Small Fiber Neuropathy in Neuropathy

*there has to be

Thu, Feb 7 1:24pm · Just Diagnosed with Small Fiber Neuropathy in Neuropathy

Ugh, I hear ya.
My experience is only mine. But I would find specialist, they can do punch skin biopsy acs some other tests and dif blood work.
I'm in ny, i'm waiting for my appt for punch skin Biopsy by only specialist in area outside of nyc.
None of the anti seizure meds worked for me.
I just started cymbalta last week and it does seem to help. I also use medical marijuana in oil form from licensed dispensary. As well as tramadol.
Maybe u can ask John who is one of the leaders here on this forum.
He seems to find a link for everything ! Which is great !
I hope this helps even a little. If nothing else, this mayo clinic forum confirms you are not alone by far.
The gas to be someone in all of ohio that can help you w this exceptional pain.
Best of luck,
Claire

Thu, Feb 7 12:42pm · Just Diagnosed with Small Fiber Neuropathy in Neuropathy

Hi,
It could very well be small fiber neuropathy. That will not show on emg, reg bloodwork .
You need a specialist in PN (small fiber) .
Idk where you are, maybe look for larger facility in your area.