About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (17)

Wed, Sep 18 8:17am · Polymyalgia rheumatica in Autoimmune Diseases

Agreed. They are bossy and forthright, but you will learn so much.

Tue, Aug 6 9:27pm · Polymyalgia rheumatica in Autoimmune Diseases

Thanks Beryl … good advice, I just have to learn to be patient. I just hate being on the prednisone.

Tue, Aug 6 9:22pm · Polymyalgia rheumatica in Autoimmune Diseases

Thanks John, I am going to check it out now. Much appreciated.

Tue, Aug 6 9:21pm · Polymyalgia rheumatica in Autoimmune Diseases

Thanks noosat1, I will check it out … always looking for more information in our struggle with this retched thing!

Tue, Aug 6 9:19pm · Polymyalgia rheumatica in Autoimmune Diseases

Thanks so much lindapc, I am in awe of you getting down to 1 mg!! I understand your reluctance to reduce further. Has your doctor done a CPR blood test? Mine does them regularly and seems to base all decisions on this, regardless of my ability to continue to taper. Oh well … onwards!

Tue, Aug 6 9:17pm · Polymyalgia rheumatica in Autoimmune Diseases

Thanks John, I am going to taper by .5 of a mg and see what happens. The doctor just seems obsessed with my CRP levels which have risen a bit, but I am coping with the tapering.

Tue, Aug 6 9:14pm · Polymyalgia rheumatica in Autoimmune Diseases

Thanks for your response, yes I agree, perhaps 1 mg is too much to reduce, this morning I took 3.5mg and I will see how it goes. What is an Aussie doing in Texas? All the best with your tapering.

Tue, Aug 6 9:00am · Polymyalgia rheumatica in Autoimmune Diseases

Hello Everyone. I live in Perth, Western Australia. I have posted on here before but not for a while. I was diagnosed with PMR in December last year, and put on 20mg of prednisone. I have been tapering ever since, ran into a bit of a flare when I hit 4mg. I have been on 4mg for 3 months, so feel a bit stuck. My CPR got down to 1 on 15mg, but has slowly risen to 26 while on 4mg. My doc wants me to stay on 4 for another 6 weeks, but I have decided to try 3mg then 4mg then 4mg. Just a cheeky little reduction. I just need to keep moving forward, and I feel fine, just stiffness in thighs and shoulders. Thoughts?