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Posts (14)

Thu, Oct 24 8:24am · Hand tremors in Brain & Nervous System

Yes, in addition to hand writing, I have some difficulty in handling dishes when one hand is holding the plate and the other is placing food on the plate. Answer: don't put too much food on the plate. Also, regarding hand writing being better in the early morning. Why is that? Maybe it's because we are more rested and are calmer; haven't yet worried about all the things that we want to do or have to do. I have also discovered another situation that works for me. I work out every day and then take a nap in the early afternoon. After waking, I am much better at writing than even in the morning. So levels of anxiety must play a role……….for me at least. I also use a "therapy dough" to strengthen my hands. It reduces tension and probably some anxiety. Working out, however much or little, has to have benefits. For me, it reduces tension and helps muscle strength as well as general health. And, I sleep better.

Tue, Oct 22 6:57am · Hand tremors in Brain & Nervous System

I'm 81 and have had ET since about age 60. I have tried different adaptions, including writing with my left hand (I'm right handed). It worked for a few years, but now both hands have ET. My answer has been the computer, where I do just fine. Often when asked to write or print, I just ask the requester to do that for me and explain that I have ET. My signature is a scribble, but it is accepted by all. I don't have pain and don't take meds. Has anyone heard of a device for ET called Calo Trio? It's a hand device, now approved, that helps with hand tremors. Thanks.

Tue, Aug 6 5:46pm · Hand tremors in Brain & Nervous System

Thank you John and others. I had made an inquiry about a product developed by Cala Health called Cala Trio. It is a hand device, like a watch, that apparently helps some with ET in the hands. Has anyone heard of this or been involved in the trial testing? Would appreciate any responses.

Thu, Jul 18 7:56am · Hand tremors in Brain & Nervous System

Just a note that the IETF Tremor Gram just announced that a new Wrist-Worn device, called Cala Trio, is going to be available some time this fall. Apparently, this device has been clinically tested over the last two years. I'm curious if any with ET have used this device and to what degree of success? My ET is somewhat manageable without medication, but is getting to be more difficult with aging.

Tue, Apr 23 7:19am · ARE YOUR MEDS HELPING OR HINDERING YOUR DEPRESSION? in Depression & Anxiety

I am curious about treatments for anxiety/depression that involve meditation and mindfulness practices. I am aware that some in the medical field promote medications and many of those meds help people. Others in the field promote therapies that rely on the psychology of the mind. Also, some illnesses may require both meds and psychotherapy. Any thoughts out there about this general subject?

Tue, Mar 12 8:36am · Myasthenia Gravis* in Autoimmune Diseases

Thank you. I'm still under observation, I suppose, but no real symptoms of MG have appeared. I have an eye doctors appointment next week followed by my neurologists evaluation. My main concern is the depression that has accompanied all these tests and speculation. We'll see what happens.

Wed, Feb 13 3:04pm · Myasthenia Gravis* in Autoimmune Diseases

I may or may not have MG, as one Mayo test was positive and a follow up test was negative. I follow this discussion and have read various items about MG. The neurologist wants to do another EMG, but I'm not sure why. My symptoms are being tired frequently, but nothing ocular, swallowing, or breathing. Hand swelling occurs but no real pain. I just use resistance putty to keep hand strength. I do understand that some people who have MG don't show positive on tests, so we keep looking for what this may be. I'm interested in others experiences with MG. How long did it take to get a diagnosis? What were the progressions, and, of course, how are they coping with meds or other treatments. Thanks to Mayo for this discussion group!

Sat, Feb 9 10:12am · Myasthenia Gravis* in Autoimmune Diseases

Hi John and thanks for your recent reply. I was waiting to get the results of my retest for MG, which was completed at Mayo-Rochester. The results came back negative for MG, which was somewhat of a surprise. We have an online network with one of the local hospitals which allows patients to review tests, look at and schedule appointments, and ask questions. Several days have gone by since I read the results but have not heard from my neurologist. So the test results are a relief but also a dilemma. The Mayo results caution that 10-15% of those who have MG do not show positive for their tests. In the meantime, I am reading an excellent book by Ronald E. Henderson, M.D. who has MD and managing that disease (Attacking Myasthenia Gravis). He writes about those who have MG and cautions about careful diagnosis. I would recommend it to anyone who may have MG symptoms. My dilemma is that while I have symptoms of being tired and fatigued, I don't have the eye, throat, or lung symptoms that are most characteristic of MG. So my situation remains "unknown" until I can talk to my neurologist and/or general physician. In the meantime, I do have a question for those who have MG or other autoimmune diseases. Have you had similar experiences with getting a correct diagnosis? I say that with respect for the medical profession, as I am beginning to see the difficulty in working through tests and eliminating possibilities. Thanks