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Tue, Aug 6 3:11pm · Polymyalgia rheumatica in Autoimmune Diseases

Another site I follow, it comes from the UK is called Health Unblocked. There are lots of postings concerning PMR from people all over the world. I have found it a mine of information and that it has many helpful suggestions and guidance

Tue, Aug 6 9:17am · Polymyalgia rheumatica in Autoimmune Diseases

I too, was diagnosed with PMR in December. I am down to 5mg, for 2 weeks, and hope to go down to 4.5 soon. I am a little apprehensive, still a lot of stiffness in legs, although twice this week I have improved walking distance. This may not be a good time to expect too much as this is the hottest month of the year, and hotter than usual, about 100 degrees F. One whole mg. seems a drastic drop for you to do at that low stage. Lots of Luck from an Aussi in the Texas hill country.

Sun, Jun 23 12:01pm · Polymyalgia rheumatica in Autoimmune Diseases

What is the amount of CBD you take each day? I have some, but it has no recommended dosage

Sun, Jun 16 1:45pm · Polymyalgia rheumatica in Autoimmune Diseases

You might actually need to go back up. When on 4.5mg. I did not want to because of eye pressure and heart condition, however had "to bite the bullet" and went back up to 7.5mg and am feeling much better. At this level I find I can make up an exercise plan and do it. Three days I go to park with Lily, dog, walk as much as I can for the 50 minutes to an hour that I stay there and three days of of walking by myself on paved trail by the river. This morning it was the park. I walked for 28 minutes before sitting down for 2 minutes (this included some additional uphill) after 2 minutes of sitting, walked another 20 minutes. Came home and feeling good. My theory is that seeing the adrenal glands put out about 7.8 mg of cortisol, the 7.5 of prednisone takes most of the burden while the glands get ready to start producing again. I'm hoping I can go down to 4mg in a week and that the adrenals will step up to the plate. 🙂

Sun, Jun 16 6:39am · Polymyalgia rheumatica in Autoimmune Diseases

What kind of side effects do you get ?

Sat, Jun 15 1:09pm · Polymyalgia rheumatica in Autoimmune Diseases

I tapered to 4.5mg. but after 2 weeks have had to go back to 7.5 because of increasing pain during the night in my legs. I am being active. walking each morning, so hoping to start tapering again soon. My doctor does not really advise on prednisone amount. I think this may be because we are all different. I know the difference between discomfit and pain – can tolerate quite a lot of discomfit. However, it becomes a problem for me when it really interferes with my mobility. Being stressed by this can also initiate a flare up. I want to try o get into best mobile condition for trip to beach in November.

Fri, May 24 7:53am · LEG PAIN in Bones, Joints & Muscles

Have you been tested for Polymyalgia rheumatica? Your symptoms similar to mine, and finally diagnosed with PMR

Tue, May 21 7:13pm · PMR and Methotrexate in Autoimmune Diseases

My physician says there is no harm in me taking Tylenol, cannot take Ibuprofin. Occasionally I will take a couple before I go to park with dog, but so far do not notice any difference