Badges (1)

About

Member has chosen to not make this information public.

Pages

Member not yet following any Pages.

Posts (9)

Mon, Sep 30 9:04pm · Vasculitis in Autoimmune Diseases

If I'm in the wrong group please direct me to the right group. Is Vasculitis an autoimmune disease? My RBC, WBC and Immature granules are too high. The ANA is negative. I get a rash on my left side under my spleen. It goes away on it's own but has come back several times. Before the negative ANA my doctor was convinced I had Vasculitis and wants a biopsy. I don't want to do one unless I really have this. Waiting to hear from doctor.

Fri, Jun 14 12:03pm · Vasculitis connected to Blood Disorder? in Blood Cancers & Disorders

I have Erythocytosis which is controlled. I recently started getting a painful rash on my stomach but it comes and goes. My hematologist said it's Vasculitis and wants to do a biopsy when it flares up again. Has anyone experienced Vasculitis due to your blood disorder? The doctor wasn't sure what was causing it. I eat healthy and exercise.

Thu, Mar 7 7:06am · Chronic leukemia. Terrified bc I can’t tolerate chemo in Blood Cancers & Disorders

@lesliem7600 YouTube and online check out Chris Beat Cancer. Stories how people used nutrition to cure their cancer. There's also a book. Nutrition has helped with my blood disorder.

Thu, Feb 7 9:05am · Is Idiopathic Erythrocytosis (Polycythemia) cancer? in Blood Cancers & Disorders

@suzeebee227 Forgive me for posting twice. I forgot to ask if anyone was having an issue with extremely low lymphocytes? Mine have been as low as 13. I take 1000 vitamin C everyday and was put on elderberry syrup every night. It's my understanding lymphocytes are the immune system. When I did phlebotomy frequently I would sometimes have high WBC and Neutrophils which as I understand means I have PCV. I always forget to ask my doctor.

Thu, Feb 7 7:59am · Is Idiopathic Erythrocytosis (Polycythemia) cancer? in Blood Cancers & Disorders

@suzeebee227 I have this and it's also unknown why. Eating a plant based diet and exercising has caused my numbers to drop enough to where I only have phlebotomy every 3 months. I start each morning with a veggie and fruit smoothie and eat lots of veggies during the day. I also eliminated sugar and I was put on a multi vitamin. I've never been told it was cancer. I'll ask at my next appointment.

Fri, Feb 1 8:52am · Generic Nexium - Still Have Nightime GERD in Digestive Health

@jackiem95 I took Nexium for 16 years. As a result my body stopped absorbing nutrients and I have to take large doses of many vitamins everyday. What I discovered is when you get heartburn doctors think you have too much stomach acid but you actually have too little. Instead of a PPI, such a Nexium, Peocid, Zantac, I take Betaine HCI with Pepsin before each meal. I drink a coffee cup of ACV, Lemon Juice and Water with it. No more heartburn and my body is finally starting to heal from all the damage PPI's caused. Betaine helps build good gut bacteria.

Thu, Jan 17 3:00pm · Low Lymphocytes in Blood Cancers & Disorders

@JustinMcClanahan no mention has been made of a bigger diagnosis. I've asked why this happened and my doctor didn't have a why. I'm taking Vitamin C daily but it was thought the Lymphocytes would improve when the vitamin deficiency's improved. So far that hasn't happened but my doctor doesn't seem concerned that it's a major issue. I've been trying to avoid people and situations that could get me sick. I'm grateful that it's not something worse.

Thu, Jan 17 10:08am · Low Lymphocytes in Blood Cancers & Disorders

I was diagnosed with erythrocytosis which is being controlled by a plant based diet and now blood test every 3 months. Even though this is controlled my Lymphocytes have always remained low at between 13 to 16%. Several times my Neutrophils and WBC have also been sightly high. I also am low in most vitamins and iron but that is being controlled with prescription vitamins. I seem to catch anything that is going around. Does anyone have experience with low Lymphocytes and had success improving them? I just want to stay well.