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Posts (10)

Oct 9, 2019 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Hi, @ajweb93, Your symptoms of vertigo, pain in neck etc were very similar to mine.
Short term effect for me were dizziness, tiredness, mood swings. When in a car, the sense of motion would last a couple of seconds after the car had stopped, a very weird feeling.

Long term, minor memory issues, more to do with daily things, as an example, putting the rubbish out, If I don't just do it, it won't get done until I suddenly remember about it again. Luckily I don't have vertigo. Crowds are ok. I don't seem to have a tolerance of people so much now, although I am working on it, my inner voice has accidently slipped out on the rare occasion.

My concentration is not what it was considering my previous job was in IT, I have decided to change career, when I do find a job 🙂 My grammar is not too hot anymore either.

Every now and then I get depressed, having witnessed my wife recover after her SAH I know these things are for the most part normal.

My point of view is that I am not 100% recovered or 100% better but that I am different now and this is the new me – for better or for worse. I relish the challenge and will make the best of life, because life is a gift that I still want to enjoy. I now go running and go to the gym (don't tell my cardiologist). I still enjoy a bit of wine now and then too.

Try not to concern yourself with peoples expectations, why are there expectations anyway? There is no time limit to this journey, My wife after seven years, still doesn't really like crowds, so we keep it to a minimum. You will improve with time, don't let anyone tell you otherwise, stay positive and if you need to make changes, then so be it.

This is a wonderful community with lovely supportive people, you are not alone.

Jun 14, 2019 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Let me know how you get on with the cyclizine.

Jun 13, 2019 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Your are welcome, best of luck with your recovery. It does get better.

Jun 13, 2019 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Hi, fortunately , my vertigo / nausea has in the main has gone. The medication I was given that seemed to work for me was cyclizine, I believe its an antihistamine. Importantly – Speak to your doctor before taking it though, as too much can make you high and stop your bladder from emptying properly amongst other things.

Feb 12, 2019 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Hi @bermuda just seen your post. Well after 7 months managed to see cardiologist and has suggested Amplatzer. He said that he has done hundreds in the UK since 2002 and there have been no serious complications. How are you so far? How is your recovery going?

I was considering noble stitch device as an alternative but can't find many people that have had it done.

Jan 6, 2019 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Hi Hammondm99, I think that having a stroke and the changes it makes to you as an individual is a very massive thing.
For me, I was focused on how impressive my recovery was but the hard part was realising, that there is more to it than that.

A question that I get asked a lot and my wife did after her SAH, is, are you better now? I found it at the time and still do, the most frustrating question. You are different after your stroke, not necessarily in a bad way, but just because I look well it does not mean my brain is better.

People used to look at my wife when she first volunteered in a tuck shop after she came home, she was a bit slow giving the change out and the looks she got were terrible. You almost wanted to wear a badge saying don't assume I'm stupid! …. I've had a stroke please be patient!

I think that is a problem as so far as brain related injury, ilness etc, if people can't see a physical maifestation then they assume you are fine. I would like to be fine but then accepting that this is the new me and I am happy with that and however that changes in the future is a big thing.

It is very worrying, stressful and sometimes depressing, I think this is normal.
Great news that you are playing guitar and please keep that up, I have always been rubbish at playing the guitair. It would have been cool to wake up with a new ability to play like hendrix but I got worse! It is interesting reading about your triathlons etc, I know a lot of retired professional athletes, these are guys that won vets world records, some have run 200+ marathons and in thier 60's some in thier 70's have all developed AFIB, very strange. Please keep in touch.

Jan 1, 2019 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Hi, thanks for the reach out.. I am doing well, although I do worry about another stroke so anxiety is an issue. A common theme seems to be that the medical profession can't be to specific as to anyone's outcome in particular. I have had varying opinions about me returning to exercise. I got fed up and am now running 5k three times a week whilst I wait to have a PFO closed, I did 98k in November and 76 in December, I am fortunate to be able to do this but I believe that finding anything to take your mind of the experience helps.

One thing I do experience is short term memory loss, but it is not specific, somethings I remember, but the doing stuff, remembering to make a call etc is what I have an issue with. I was wondering how many people have this?. It is strange because if you say to me you were going to call someone, I will remember, I seem to need a kickstart. I am having and issue remembering non important conversations.

Please contact me I am happy to share my experiences with anyone.

Dec 18, 2018 · Cerebellar Stroke - experience/treatment/recovery in Stroke & Cerebrovascular Diseases

Hi, My wife suffered a SAH stroke, in 2012. She was in intensive care for 5 days and at one point it was 50/50 if she would recover but anyone who knows my wife would bet on her. She is an inspirational person.

It was a very stressful time, she had a blocked vein which ruptured, and the veins that drain on her right side are now 100% blocked due to scar formation. Doctors believe it was the contraceptive pill that may have caused it.

I found her having a seizure when I went to go to bed, a sight I will never forget. It still haunts me today. When she came out of hospital she could barely walk a few meters and her tastes completely changed, she still won't drink coffee to this day, having been a big coffee drinker. It took her two years to eat tomatoes again.

When she came out of hospital she lost words and used sounds and shapes to identify words she had lost, so association played a big part in her recovery. 3 months later she started to finish her degree that she had just startred before the SAH, that was a tough year!

We managed to find a brilliant dooctor in the UK (private but did NHS, national health work ) who was progressive thinking.
She came off the anti seizure meds and after I wrote to a professor of neurology she got an appointment at Queens and came of anticoagulation in May 2013.

She is doing well but like you does not do crowds well and gets tired if too much is going on. Using tech is more of a challenge for her, she can do it but there is more of a learning curve. She is now on anti depressants which have really helped.

Intellectually she is still leagues above me. She always puts everybody before herself and has helped me with my stroke recovery in 2018!

I just wish i could give her more, that is my aim in life!