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Thu, Jan 31 10:17am · Rare cancer: ovarian clear cell carcinoma in Gynecologic Cancers

Thank you Colleen! I will attend the webinar.

Wed, Jan 30 9:38am · Rare cancer: ovarian clear cell carcinoma in Gynecologic Cancers

Never mind I figured out how to private message her. Thanks for all you do!!

Wed, Jan 30 9:32am · Rare cancer: ovarian clear cell carcinoma in Gynecologic Cancers

Thanks Colleen. How do I private message her?

Tue, Jan 29 6:34pm · Rare cancer: ovarian clear cell carcinoma in Gynecologic Cancers

Hi Molly~ I am so very sorry to hear about your diagnosis. I am fighting clear cell carcinoma right now too and have been for 1.3 years. I was told I didn't have cancer either until my biopsies came back. The problem with the clear cell, as you know, is that the doctors can't visually see it until it is a mass and it does not show up in your regular blood work. Once you have a baseline with your CA 125 it can alert you of possible growth. My oncologist believed that he got it all out with my second surgery and suggested that I do 6 rounds of carbo/taxol regimen just as to be safe. I started chemo 4 weeks after my second surgery. I would encourage you to do the chemo since the doctors can not see clear cell carcinoma. I did not want to have any regrets. My cancer came back after only three months and I am continuing to fight it!! I'm only 49 and want to see my grand babies grow up. I believe that I am here still because of the treatments I have and continue to do. This is a crazy, serious, aggressive cancer and needs to be treated!! Please reach out to me if you want to talk more in depth.

Tue, Jan 29 6:49pm · Rare cancer: ovarian clear cell carcinoma in Gynecologic Cancers

I'm sorry it's taken me so long to respond. It's been a little crazy….I'm getting ready to start radiation. The chemo is not working at all for me and there is not a lot of options right now. We're going to try radiation!! Thank you so much for your kind words…I appreciate them!! As far as what I do for emotional support….right now I have a great network of friends that are walking through this with us. However, my doctors office has put me in contact with COCA (Colorado Ovarian Cancer Alliance) and they have monthly support groups I am reaching out to. I am also thinking about doing some counseling/therapy. When your looking at a terminal illness it jacks with your mind. Some days I can't seem to focus on anything!!! I am sure the state your in has some organization for ovarian cancer.

Tue, Jan 8 1:05pm · Rare cancer: ovarian clear cell carcinoma in Gynecologic Cancers

I’m sorry to hear of your diagnosis janice1106. Mine has been very complicated and so far untreatable. I’m praying for something to work and a miracle!!
Keep me posted on how you are doing please.

Tue, Jan 8 1:00pm · Rare cancer: ovarian clear cell carcinoma in Gynecologic Cancers

Thank you. I’m getting very good care… the cancer is very stubborn though. I hard one to have!! 😬.

Dec 16, 2018 · Rare cancer: ovarian clear cell carcinoma in Gynecologic Cancers

Hi. I was diagnosed in 11/17 with Stage IC. I underwent 6 rounds of platinum based chemo and at my first 3 month check up the cancer reoccurred. This means I am platinum resistant. Any other women out there that are platinum resistant?