Hello! I am so sorry that you are going through such a rough time!
if you are looking for a pediatric MALS surgeon, there is an amazing amazing one at Cincinnati Children's Hospital, Dr. Nathan. (https://www.cincinnatichildrens.org/bio/n/jaimie-nathan). He has a very unique surgery method, and has a very high sucess rate. He is very deliberate and thorough, so rules out everything before surgery, to make sure that the surgery is necessary and will really help treat the symptoms. I can personally vouch for him, he saved my life.