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Dec 22, 2018 · Facial Pain - Empty Nose Syndrome in Ear, Nose & Throat (ENT)

Primary Care Internist has sent me to two allergy doctors, and an ENT with no resolution. The ENT doctors here do not recognize ENS and are unwilling to address the possibility that is my problem. I have had a CT scan of my sinuses and an MRI of my head with no resolution. A second MRI/MRA was done 12/20 and I have no results for yet. Beyond that, my primary care doctor is as frustrated as I am at this point. The possibility of ENS was something that I found while researching my symptoms and he feels its a strong possibility. The problem is, there are few doctors that recognize ENS which brings us to why I was reaching out to Mayo Clinic. Can I assume that you can not refer me to a Mayo doctor that recognizes ENS?

Dec 18, 2018 · Facial Pain - Empty Nose Syndrome in Ear, Nose & Throat (ENT)

You ask what my symptoms are like currently. Here are the most troublesome:
Nearly constant dizziness/lightheadedness and fullness in my ears – MOST Problematic.
Pressure/discomfort over eyes (eyebrow area) and forehead
Sense of pressure behind eyes and eye burning. Frequently squeeze blink
At times, it feels like nothing stops ice cold air from hitting the interior of my sinus cavities despite the fact I sitting in my house
Occasional pressure on the left side of the bridge of my nose
Occasions of phantom smells, sometime worse than others, but hypersensitivity to volatile compounds such as perfume

Dec 11, 2018 · Facial Pain - Empty Nose Syndrome in Ear, Nose & Throat (ENT)

Has anyone actually seen a Mayo Clinic doctor for this condition? Live in Madison, Wisconsin and am in search of help.