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Wed, Jul 31 6:53pm · Post cholesectomy (gallbladder removal) chronic back pain in Digestive Health

@woodsiechris It's wonderful news that you're doing better. I hope that you continue to improve. Feel well.

Sun, Jul 14 11:39am · Post cholesectomy (gallbladder removal) chronic back pain in Digestive Health

@woodsiechris I am so, so sorry for all that's happening. I opted to leave my post cholesectomy syndrome alone and try to control it with more frequent, smaller meals and avoid fatty/greasy foods. We do need a certain amount of fat for the body to use protein but, I try to get it from things like olive oil or a scrambled egg made without butter, spray oil, etc.

I was put on Bentyl early on – and discovered the hard way that it knocked me out (I slept through the alarm and called out of work after 11am). I don't think it was particularly useful. My dad was prescribed it too for 'spastic colon.'

Will the Crohns or Colitis calm down after your body recovers from the trauma? My cousin has ulcerative colitis (genetics sucks in my family) and when my dog began to have symptoms of colitis (dogs can have it too), she suggested Flagyl. Technically it's an antibiotic but, a helpful side effect is it's anti inflammatory in the digestive system. It helps my cousin and works wonders for my dog during his flare ups.

I do hope this stops once you heal. Are you showing other symptoms of that like rashes or arthritic -type aches?

Mon, Jul 8 3:26pm · Migraine - Aimovig and Cardiology or Pulmonology in Brain & Nervous System

@quazar There is a headache device sometimes called the
'migraine pacemaker' – it's a neurostimulator. It appears to be useful with certain headaches like cluster headaches. Has your doctor discussed this device with you? The device is implanted most often in the chest (not deep) with leads going up to the temples and forehead. Some patients have had excellent results. It's a same-day procedure. I looked into it for my chronic intractable migraines but, stats show it works better for other types of chronic headaches.

Mon, Jul 8 12:41pm · Migraine - Aimovig and Cardiology or Pulmonology in Brain & Nervous System

Hi @lisalucier – the Calcium Score is a week from Friday, the echocardiogram is in early August. Depending on results, the cardiologist will put me on a medication prior to the stress test. As for migraine prevention, nothing is left. The list of prevention and treatment meds that I've been prescribed is long. One worked perfectly (Cymbalta) but, screwed up my blood sugar. Botox stopped the migraine head pain but, no other migraine symptoms. I am finished with CGRP antagonists. The more I read, the more frightening the class is because CGRP is crucial to the body. While searching last night about shortness of breath (the cardiologist is hoping that reverses once Aimovig is out of my system), I came across info about the neuro-immunology nexus and how long doctors/researchers have known that CGRP is vital to the immune system (including T-cells). I'm pasting the link directly below. I think that doctors who specialize in one branch of medicine or another, tend not to look at the impact of treatments on other body systems. Below that link, I'm posting an item on possibly using CGRP as an asthma treatment.

"Calcitonin gene-related peptide is a key neurotransmitter in the neuro-immune axis" –

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3924554/

"The neuropeptide calcitonin gene-related peptide affects allergic airway inflammation by modulating dendritic cell function" –

https://www.ncbi.nlm.nih.gov/m/pubmed/21752117/

Tue, Jul 2 4:48pm · Migraine - Aimovig and Cardiology or Pulmonology in Brain & Nervous System

Hi – The cardiologist ordered an echocardiogram and the calcium score. Then she'll order a stress test after she sees the results of the calcium score. I'm including a link to an explanation of that test.

She said she's hopeful the shortness of breath and palpitations will stop once Aimovig leaves my system but, given that my father had a heart attack and I'm so winded with palpitations, she wants these tests run. She said she'd surprised that these meds are prescribed to people with family history of heart disease and that it doesn't exclude patients with heart disease. I have to call tomorrow to schedule the calcium score test and the echocardiogram is in August.

Mon, Jun 17 8:40pm · Migraine - Aimovig and Cardiology or Pulmonology in Brain & Nervous System

I keep detailed calendar entries and use the red circle to denote more severe symptoms and/or Aimovig-related side effects. I'm including a partial screenshot. Below what is in the picture is documented all prescription and OTC meds and everything I ate. I'm able to ascertain that the Aimovig upper abdominal cramping and spasms are much worse on days of high heat/humidity, particularly when storms occur. My GP is aware of all of this and I showed him Amgen research report as well as article written by a doctor who sourced research when noting serious concerns about blocking CGRP as that pertains to multiple systems within the body. The same article is going to be given to the cardiologist and pulmonologist. I just need to know that this will stop and I'll be able to walk, brush my teeth, put my hands over my head long enough to wash my own hair. Only when I'm sitting/laying down is my breathing okay. Link to the article is below. I think it would be exceptionally useful to neurologists to see it. My GP was shocked that Aimovig prescribing info failed to note cardiovascular risks, drug interactions (e.g. ibuprofen). I had to reschedule my neuro appt because I haven't been well enough to drive that far.

https://www.practicalpainmanagement.com/pain/headache/stake-possible-long-term-side-effects-cgrp-antagonists

Mon, Jun 17 5:32pm · Migraine - Aimovig and Cardiology or Pulmonology in Brain & Nervous System

@lisalucier I'm seeing the cardiologist on July 2nd. The only thing that helps with shortness of breath is sitting down. I'm now at day #157 since my last 140mg Aimovig dose and the upper abdominal cramping and spasms that I experienced for weeks has returned (they restarted yesterday and went on for just shy of 11 hours on Sunday; they're happening now as well). These are accompanying spasms and cramping in my thighs and intense pain at each injection site. The shortness of breath began before the abdominal spasms returned and isn't making it any easier. Because CGRP is essential as the primary vasodilator, if Aimovig isn't the primary reason for the shortness of breath, the inability to get more oxygenated blood through is making it more complicated. After seeing the cardiologist, if she sees that my heart is okay, I have an appointment with the pulmonologist scheduled.